Colton has been diagnosed with Spinal Muscular Atrophy ("SMA") Type 1 (a form of muscular dystrophy). He will likely never crawl, walk or gain the strength to sit independently. Type 1 SMA is the most severe form of the disease. Some things Colton may experience are difficulty eating, swallowing and breathing. The life expectancy of babies with Type 1 SMA is up to 3 years.
There is a huge team of doctors, medical professionals and experts involved in Colton's battle to fight this disease which has only just begun. For now, he must be seen weekly by the team of doctors that will remain a part of his life. Colton will require the use of a BI-PAP machine to assist with his breathing at night. He will be participating in a SMA Trial Study in New York and begins treatment this week. Hopefully the drug and treatment will provide a better quality of life for him. In doing so, Colton must travel to NY from CT.
Colton will require constant care now at home. His dad has missed an extensive amount of time from work and is forced to reduce his weekly work hours. Colton will require extensive medical care, supplies and equipment. All donations will go toward day to day expenses and financial support for him.
This diagnosis is heartbreaking and overwhelming to all of the family. Please help us in any way that you can and donate to this GoFundMe account so we can help Colton. Please keep him in your prayers as he fights this muscular disease and thank you from the bottom of our hearts.
- Derby Auxilary Sgt. Jeff Wilchinsky
- James & Kathleen O'Brien
- Prospect Beach Fish & Game Club
- Jenny Ames
- Ellen Davey
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