Colonel Brian Sutton’s five-year-old son has been diagnosed with MPPH (Megalencephaly-Polymicrogyria-Polydactyly-Hydrocephalus) syndrome, a very rare genetic disorder. Families affected by rare conditions like MPPH often face uncertainty, limited resources, and very few treatment options.

That’s why we are partnering with the National Organization for Rare Disorders (NORD)—a leading nonprofit dedicated to supporting patients, advancing research, and providing hope for families impacted by rare diseases.

By raising funds for NORD, we aim to shine a light on MPPH and other rare disorders, ensuring that no child or family has to face these challenges alone. Every contribution helps NORD expand patient support, fund groundbreaking research, and bring communities together in the fight against rare diseases.

Together, we can make a real difference

National Organization for Rare Disorders Inc

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Every contribution, big or small, makes a real impact. Even just a few dollars can help move this mission forward and reach those who need it most.

If you can’t donate right now, sharing this fundraiser is also incredibly helpful.