Blake's Battle Against Familial ALS
Donativo protegido
Dear friends and supporters,
I am writing to ask for your help in a time of great need. My name is Blake, and I have been recently diagnosed with familial ALS, a rare and devastating disease that also affected my father (seen next to me in my profile picture). He was diagnosed and passed away in 2017.
ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig's disease, is a progressive neurological disorder that affects the nerve cells responsible for controlling voluntary muscle movement. As the disease progresses, patients lose the ability to speak, swallow, and breathe on their own, eventually leading to complete paralysis.
My family and I are launching this GoFundMe campaign to raise funds that will help cover the cost of my medical care and related expenses. Your donations will help us cover the costs of taking Qalsody (Tofersen), a new drug to help slow the ALS progression. This drug unfortunately requires a monthly spinal injection and costs are very high. The hope is this new drug will help pause my disease progression and slow my decline.
I am deeply grateful for any support you can provide, no matter how small. Every dollar counts and will make a significant impact on my ability to cope with this disease. Your donations will help me continue to live as independently as possible and maintain a high quality of life, despite the challenges that come with ALS.
Thank you for your consideration and for your support in this difficult time.
Sincerely,
Blake Miller
I am writing to ask for your help in a time of great need. My name is Blake, and I have been recently diagnosed with familial ALS, a rare and devastating disease that also affected my father (seen next to me in my profile picture). He was diagnosed and passed away in 2017.
ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig's disease, is a progressive neurological disorder that affects the nerve cells responsible for controlling voluntary muscle movement. As the disease progresses, patients lose the ability to speak, swallow, and breathe on their own, eventually leading to complete paralysis.
My family and I are launching this GoFundMe campaign to raise funds that will help cover the cost of my medical care and related expenses. Your donations will help us cover the costs of taking Qalsody (Tofersen), a new drug to help slow the ALS progression. This drug unfortunately requires a monthly spinal injection and costs are very high. The hope is this new drug will help pause my disease progression and slow my decline.
I am deeply grateful for any support you can provide, no matter how small. Every dollar counts and will make a significant impact on my ability to cope with this disease. Your donations will help me continue to live as independently as possible and maintain a high quality of life, despite the challenges that come with ALS.
Thank you for your consideration and for your support in this difficult time.
Sincerely,
Blake Miller
Organizador
Blake Miller
Organizador
Hamilton, OH