Peyton’s People, Kick’n Lymphoma
Beschermde donatie
This is a story of one of the most strongest, bravest, and fearless child that I know. My child. This is one of those situations that is a parents worst nightmare.
It started when Peyton told me he felt a lump in his neck. Without concern, thinking it was an enlarged lymph node, we waited until his 10 year physical and pointed it out to the provider. We had some imaging done and the differential diagnosis were benign. The advice was to have that lymph node surgically removed. During this first surgery Peyton was so brave and when he woke up all he asked for was doughnuts. The surgeon was confident that there was minimal chance of anything to worry about.
We woke up the next morning thinking it was just going to be another regular day. Then came the call. With a heavy heart and deep concern the surgeon hit me with the news. Lymphoma. A lymphatic cancer. I collapsed, lost my breath, and almost got sick. I have never been more scared in my whole life. He said he wanted us to get in the car immediately and head to Chapel Hill Hospital, where the pediatric oncologist is waiting and already has our information.
We were checked in to inpatient where we have remained the past week. The oncologist explained that the type of lymphoma the tissue is positive for does not match the clinical signs and symptoms. They were second guessing the results. We then sent off for the tissue that was removed from his neck in Wilmington to be sent to Chapel Hill for them to test themselves. After receiving the sample they produced the same results. Non-Hodgkin’s Burkitts Lymphoma. Peyton then received a PET scan that showed another tumor behind his right ear. Then came the second surgery. The surgery that was supposed to take 1 hour took 3 1/2 due to them finding more than what the scan showed. After the test was conducted on that tissue we came to a 98% conclusion that this is one of the rarest forms of this type of Burkitts lymphoma out there. Definitely not a text book case. There is a treatment available tested on a group of 366 children with a upper 90s percentage of a CURE!
My son is a fighter and cancer has messed with the wrong family. We will beat this. We have been shown such an amazing amount of support from friends, family,coworkers, and UNC staff. Without you we would have went insane. You all helped us smile in such a hard time. A special shout out to the people that are going through some extremely difficult times in their own life and showed an amazing amount of support. We will put this behind us.
Peyton opted to donate the rest of his tissue samples to research in order to help others with this incredibly rare cancer. He is my hero and so much stronger than anybody I have ever met.
It started when Peyton told me he felt a lump in his neck. Without concern, thinking it was an enlarged lymph node, we waited until his 10 year physical and pointed it out to the provider. We had some imaging done and the differential diagnosis were benign. The advice was to have that lymph node surgically removed. During this first surgery Peyton was so brave and when he woke up all he asked for was doughnuts. The surgeon was confident that there was minimal chance of anything to worry about.
We woke up the next morning thinking it was just going to be another regular day. Then came the call. With a heavy heart and deep concern the surgeon hit me with the news. Lymphoma. A lymphatic cancer. I collapsed, lost my breath, and almost got sick. I have never been more scared in my whole life. He said he wanted us to get in the car immediately and head to Chapel Hill Hospital, where the pediatric oncologist is waiting and already has our information.
We were checked in to inpatient where we have remained the past week. The oncologist explained that the type of lymphoma the tissue is positive for does not match the clinical signs and symptoms. They were second guessing the results. We then sent off for the tissue that was removed from his neck in Wilmington to be sent to Chapel Hill for them to test themselves. After receiving the sample they produced the same results. Non-Hodgkin’s Burkitts Lymphoma. Peyton then received a PET scan that showed another tumor behind his right ear. Then came the second surgery. The surgery that was supposed to take 1 hour took 3 1/2 due to them finding more than what the scan showed. After the test was conducted on that tissue we came to a 98% conclusion that this is one of the rarest forms of this type of Burkitts lymphoma out there. Definitely not a text book case. There is a treatment available tested on a group of 366 children with a upper 90s percentage of a CURE!
My son is a fighter and cancer has messed with the wrong family. We will beat this. We have been shown such an amazing amount of support from friends, family,coworkers, and UNC staff. Without you we would have went insane. You all helped us smile in such a hard time. A special shout out to the people that are going through some extremely difficult times in their own life and showed an amazing amount of support. We will put this behind us.
Peyton opted to donate the rest of his tissue samples to research in order to help others with this incredibly rare cancer. He is my hero and so much stronger than anybody I have ever met.
Organisator en begunstigde
Janette Davidson Minix
Organisator
Jacksonville, NC
Meghan Muscarella
Begunstigde