In the blink of an eye your life can change due to disease. Your career, goals, priorities and dreams are forced to take a different turn.
You become fragile, vulnerable, flexible and yet the heart of a warrior. Only someone who fights daily the chronic pain to LIVE knows what it is to be a warriors. I’m a Lupus Warrior. One of many, diagnosed in my early 30s but learning I had carried symptoms of the disease since my teens I was lucky to have “mild” symptoms of joint and lung activity for many years. Then the bottom dropped out and Lupus attacked my brain. Daily headaches, became daily migraines, became daily seizures with migraines and I tried to work through it. My muscles lockup for no reason leaving me paralyzed. All of this has gone on and has gotten progressively worse with small strokes, blood clots, seizures that cause me to black out and injure myself falling wherever I am. Danny is afraid for me to leave my bed.
I’ve spent countless hours in the ER, hospital and specialists office with most of them shrugging their shoulders.
My neurologist is offering hope in spinal surgery that would block part of the pain signals I’m my neck. They think this might help some issues. It’s a trial and if it helps then they would do it permanently. All of this takes a lot of money and I’m tapped.
So this Lupus Warrior is offering another Warrior.
Prints of my painting Buttrfly Dance. (Butterfly’s are a symbol for Lupus because of the Butterfly rash we get on our face often.)
Thanks in advance to everyone who can give. I want to dance again and I really need your help!
- Jeff Bell
- Leanna Van Eman
- Debbie Hunt
- Michael Price
Organizer and beneficiary
Mount Juliet, TN