CURE FOR DHRUV

A Hope A Help A Drug - All these children DESERVE

My name is Sneha. My nephew, Dhruv is born with a rare genetic disease called CTNNB1 syndrome. This affects his ability to sit, stand, walk, speak, hold things in hand and every other activity that a healthy child can do. This disease is so rare that only 400 children have been diagnosed globally.

At first when we learnt about his diagnosis, he was around 17 months old. He missed all of his milestones and genetic testing results showed that he and the other children who have been diagnosed with the same disease will be having motor delays, learning & speech disability, Autism, Cerebral Palsy. This is very challenging, and my family is going through a lot of emotional distress and depression.

While researching about this disease, I discovered CTNNB1 foundation based in Europe, founded by another CTNNB1 mom who is determined to develop a groundbreaking cure for this disease. It is called Gene Therapy, and it can greatly impact Dhruv’s future. My family and I are determined to help my nephew to give him the best life possible.

For Dhruv’s 4th birthday, we want to raise $100,000 to give to the CTNNB1 foundation, so that he and other kids like him, may have the opportunity to receive this life-changing treatment.

Current status of Gene Therapy research:

Other children’s Gene Therapy success stories: LINK - GT Success Stories

CTNNB1 Foundation Website: LINK

Please SHARE and DONATE if you can.

Thank you from the bottom of our hearts!

Dhruv’s Army