Support for Medical Expenses
Doação protegida
This fundraiser is for the ongoing medical and related expenses for two medically complex siblings. From travel to out of the area specialists, transportation, hotel, cooling units for the house, doctors that require cash up front, parking fees, safe foods during hospital stays, and more.
Since April of 2014, we have been dealing with Jack (10) and his unique health issues that have stumped his care providers. He sees multiple specialties, has had two hospitalizations, and has been to some 70 appointments in just over a year in an attempt to control his symptoms and receive a diagnosis that explains his health struggles. He has gone from an extraordinarily active kid, to one dealing with almost constant pain. He needs more tests, more labs, retesting some biopsies, and some new specialists. He has a new team, none of whom are close to home. We need help getting him to his appointments!
In January 2015, Davy-Rose (11) started having recurring anaphylaxis (severe allergic reactions). We watched her quickly deteriorate from being an active child, and a runner, to having multiple allergic reactions daily and unable to tolerate most foods. In the end of May she was taken to a specialist two+ hours from home who is well versed in the disorder she was suspected to have. Admitted that day, she was inpatient a month. She received a diagnosis of systemic mast cell disease, and was subsequently put on the appropriate medications. This is not an easy disease, and currently Davy-Rose is housebound, has 7 safe foods, and is TPN dependent. For a quick explanation on what mast cell disease is, please view this short segment from CNN. http://www.cnn.com/videos/health/2015/04/29/orig-allergic-to-life-brynn-duncan-mast-cell-activation-syndrome.cnn
Since April of 2014, we have been dealing with Jack (10) and his unique health issues that have stumped his care providers. He sees multiple specialties, has had two hospitalizations, and has been to some 70 appointments in just over a year in an attempt to control his symptoms and receive a diagnosis that explains his health struggles. He has gone from an extraordinarily active kid, to one dealing with almost constant pain. He needs more tests, more labs, retesting some biopsies, and some new specialists. He has a new team, none of whom are close to home. We need help getting him to his appointments!
In January 2015, Davy-Rose (11) started having recurring anaphylaxis (severe allergic reactions). We watched her quickly deteriorate from being an active child, and a runner, to having multiple allergic reactions daily and unable to tolerate most foods. In the end of May she was taken to a specialist two+ hours from home who is well versed in the disorder she was suspected to have. Admitted that day, she was inpatient a month. She received a diagnosis of systemic mast cell disease, and was subsequently put on the appropriate medications. This is not an easy disease, and currently Davy-Rose is housebound, has 7 safe foods, and is TPN dependent. For a quick explanation on what mast cell disease is, please view this short segment from CNN. http://www.cnn.com/videos/health/2015/04/29/orig-allergic-to-life-brynn-duncan-mast-cell-activation-syndrome.cnn
Organizadora
Kara Shaw
Organizadora
San Diego, CA