In 2015 she faced multiple surgeries from lumbar drains, lumbar shunt, revisions, and eventually a vp shunt all to save her vision from intracranial hypertension.
As time went on, Jordan missed school, her friends, her life. For 3 years Jordan battled with unknown, undiagnosed chest pain and illness. Within the last week and even the last few hours of her life, we were informed she had a form of myelofibrosis, lymphoma and alpha-1 antitrypsin deficiency (SZ) on top of the venous thrombosis and intracranial hypertension. She faced multiple operations but her body just couldn’t fight any longer.
We had no warning. We didn’t know we had such little time left with her. Instead of planning her 18th birthday, her prom, and her high school graduation, we are planning her funeral services. Saying goodbye to our Jordan, our jellybean, our J, is the hardest thing we have faced. Jordan was fascinated with Paris since a young girl. Her dream was to move to Paris and pursue her art. She used to learn French on her own time and would frequently tell us bonjour or je t’aime. After battling sickness for the past few years, Jordan passed on March 7, 2018 in Loma Linda, CA with her mom and dad by her side. Mouche chérie haute.Oh, so happy and so bright!There is perfect joy and beauty In this everlasting light. All the pain and grief is over,Every restless tossing passed; I am now at peace forever,Safely home in heaven at last.
- Shantel Calvert
- Stephanie Gregory
- Rene Urbanovich
- Holly Zhang
Organizer and beneficiary
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