![Main fundraiser photo](https://images.gofundme.com/3SgD0he1BywG0p1ZxH1L-lTxUAY=/720x405/https://d2g8igdw686xgo.cloudfront.net/33726214_1548866972581710_r.jpeg)
Teagan Romano Leukodystrophy Fund
Donation protected
Our Granddaughter Teagan Romano was diagnosed with Metachromatic Leukodystrophy (or MLD). This is a very rare and serious disease, which you may find more information on this website:
https://www.huntershope.org/ family-care/leukodystrophies/
It is urgent that funds begin to arrive as soon as possible, as time is of the essence. Most children with this disease do not live past the age of 5 and she is currently just under 2 years of age.
Teagan may need experimental treatments to give her any hope of survival. Our family is hoping to raise funds to put towards Teagan's future medical expenses.
![](https://d2g8igdw686xgo.cloudfront.net/33726214_1539492002514755_r.jpeg)
![](https://d2g8igdw686xgo.cloudfront.net/33726214_1539492028290108_r.jpeg)
https://www.huntershope.org/ family-care/leukodystrophies/
It is urgent that funds begin to arrive as soon as possible, as time is of the essence. Most children with this disease do not live past the age of 5 and she is currently just under 2 years of age.
Teagan may need experimental treatments to give her any hope of survival. Our family is hoping to raise funds to put towards Teagan's future medical expenses.
![](https://d2g8igdw686xgo.cloudfront.net/33726214_1539492002514755_r.jpeg)
![](https://d2g8igdw686xgo.cloudfront.net/33726214_1539492028290108_r.jpeg)
Organizer and beneficiary
Eric Johnson
Organizer
Colorado Springs, CO
Kelsey Donnelly
Beneficiary