Cj’s Medical Fund drive by KofC2475
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The Knights Of Columbus Will Hold A Fund Raising Benefit For The Youngest Son Of Our Parishoners, Christopher Barreyro Sr.
Chris Junior Was Born A Blue Baby And Has A Multiple Congenital Defects, Among Which Are Life Threatening: He Has A Condition Called Hypoplastic Left Heart Syndrome In Which The Left Side Of The Heart Failed To Develop, And Therefore He Has Only One Valve.
He Has Kabuki Syndrome Which Consist Of Of Hypotonia Or Congenital Weakness Of His Muscles.
He Also Has Cleft Palate. This And The Hypotonia Render Him Unable To Swallow Foods, Only Fluids. Therefore He Is Fed Through A Gastric Tube Inserted Through The Abdomen. He Is Also Prone To Infections Which Again Can Be Life Threatening. He Has Deafness And Frequent Recurring Ear Infections And Has A Number Of Surgical Procedures Such As Tube Insertions Into His Eardrums.
Since His Birth 4 Years Ago He Has Had 6 Surgeries; 4 Cardiac Catheterization And Other Procedures. Soon He Will Need A Surgery To Repair His Cleft Palate.
All His Ailments Therefore Cause Him Delays In His Physical Mental Developement , Speech Impairment Due To Deafness In Which He Communicates Mainly By Signs. He Has Doctors Appointment Atleast 3 Times A Month And Is On Weekly Theraphy.
All These Are Taking Their Toll On The Family Causing Physical Mental And Emotional Strain On Everyone. The Father Is Unble To Work Due To Many Appointments With Doctors, Therapists, Treatments And Other Procedures.
In This Day And Age, This Chld Could Have Been Aborted. But He Survives And Thrives, Thanks To The Loving Care Of His Parents, Their Christian Catholic Values With Their Respect For Life.
The Days And Years Ahead Will Be Rough, But At This Time In Their Lives They Need Our Loving Support In Whatever Means We Can Give. Thankyou For Your Concern And Generosity.
Thank You!
CJ is born with CHD i.e. HLHS and suffers from Gerd, low tone muscles or hypotonia, unspecified hearing loss. At an early stage of his life he went to a 2 major open heart surgery(Norwood and glenn procedure); and was suspected with kabuki syndrome just recently. CJ is fed through G tube, frequently suffers from ear infection an ear tube was placed in order to avoid it, but needs replacement anytime soon. By the end of this year he might undergo his Final heart surgery called the Fontan procedure.
We want to be there on his side when he faces a very difficult Battle! A very challenging circumstances for us You may think! but with the powerful prayers and support from You "Everything is Possible!".
CRB ,
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Organizer
Sonia Rabara Barreyro
Organizer
Santa Maria, CA