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Nida's Spine Surgery

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What would you do if someone told you that all three of your children have a rare and fatal genetic disorder which can take their life in young age and that they will be confined to wheelchairs for the rest of their lives? Please if you can spend just 2 minutes to watch the clip to understand the challenges of this brave family... https://www.youtube.com/watch?v=NfXh-kI9XXc SHAHID ZUBAIR'S CHILDREN Suffering with Life Threatening disease Muscular Dystrophy Type LGMD, subtype 2D.. (Children become paralyzed and wheelchair bound  due to this issue) Shahid Zubair's family desperately needs help in getting his 3 children treatment and surgery they need here in the US. Due to progressive weakness "the smallest task has become a challenge for these once active and energetic kids. Looking Ahead Scoliosis Surgery is option for Nida to expand her life span and Gene therapy is a potential treatment option and is in the process of approval by FDA for various muscular dystrophies. They previously have fundraised money in Pakistan to come to the US and struggling for get help for children long term treatment and existing complex issues, they need help for facing long term 1.children medical treatment 2.Survival issues in USA The family and their story were featured on this television show https://youtu.be/BmT4Hqnej3I We were living in Lahore, Pakistan with my wife, Saher and three children––Nida, 20, Ahmad, 18 and Eman, 13. All three of my children are now in wheelchair and suffer from a rare and progressive muscle-wasting genetic disorder called Muscular Dystrophy that has paralyzed them from waist down. In Pakistan there is no diagnosis and support treatment available. Due to complex medical issues we are in urgent need of funds to take my children to University of Chicago Medicine for a much needed scoliosis surgery for Nida and other treatment for all three. Due to this Genetics issue  Children also suffer from ongoing pulmonary, respiratory and GI issues. Nida has also developed scoliosis of spine and needs corrective surgery. I lost my job last year and can’t find another because of the children’s ongoing needs that require my physical presence. My children recently got accepted by the School of Medicine at University of Chicago, Illinois USA for treatment, Also University of Medicines Ohio are working for gene therapy/stem cell treatment and for Limb Girdle 2D Type Muscular Dystrophy. It is a ''once in a lifetime chance for my children and we do not have the means to make this much needed journey, stay and to fulfill the financial obligations that come with it. I am hoping to take my children for this life changing journey to U.S Hospitals and Research Centers"  Since then we raised money for travel and lodging but still need an extraordinary amount to pay for treatment and stay in USA,  "Spine surgery can help for her survival and a better life span". As Hospital of University of Chicago Medicine has expertise for such complicated surgeries, they have given an estimate of 365000 USD for Nida's Surgery. Our Family is now desperately needs your support to arrange funds. We are now in USA for treatment of Nida's Spine surgery. Our children were perfectly healthy and bright until they got this disease which causes severe muscular wasting. It has left our children paralyzed from Shoulders till waist down and effecting their joints and bones especially spine, Knees and foot ankles.  The National Institute of Neurological Diseases and Stroke (NINS) features a list of links on its website regarding clinical trials for LGMD 2D in final stages of approval from FDA and for other type of Muscular Dystrophies in the United States and worldwide, which can be seen at  1.http://www.ninds.nih.gov/disorders/md/md.htm and http://patientinfo.ninds.nih.gov/DiseaseInfo.aspx?did=352&dlevel= 2. Financial Hardship We are without a source of income at present owing to the children’s challenges. As such our means are very limited.  Please support us by choosing one of the many ways below to donate below. https://www.miracleforthreelife.com/how-you-can-help Sincerely Shahid and Saher    DONATE your Charity/Zakat/what Amount you can for her treatment. Further details are available at  website: 1. www.miracleforthreelife.com 2. https://www.youtube.com/watch?v=KoTOd3dbz2I&feature=youtu.be 3. https://www.facebook.com/uniladmag/videos/3317284114961291/  TV AND NEWS FOR SHAHID'S CHILDREN: 1- https://www.youtube.com/watch?v=BmT4Hqnej3I 2- https://www.youtube.com/watch?v=mV0Cj5b0EiU 3- EXPRESS TRIBUNE ARTICLE FOR 3KIDS;  http://tribune.com.pk/story/479636/muscular-dystrophy-genetic-disease-leaves-two-siblings-wheelchair-bound/ 4- CNN ARTICLE: http://ireport.cnn.com/docs/DOC-1154376 Contact No of family: +1312  536  1639  Chicago USA

Organizer and beneficiary

Shahid Zubair
Organizer
Naperville, IL
Jamal Mian
Beneficiary

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