Edie's Recovery Fund

$224,985 of $250,000 goal

Raised by 1,222 people in 9 months
Created May 20, 2017
Our dear friend Edie Perkins is a one-of-a-kind person. She is a kind, adventurous, fiercely independent woman and athlete whose life changed irremediably in a few seconds as the sun rose over the ridge one morning a few weeks ago.

Edie needs our help now.

Last year, Edie moved from New York City to Los Angeles to pursue a new job opportunity and embrace the free-spirited, outdoor life that perfectly complements her passions: long-distance cycling and marathon running.

On April 20, 2017 while on a solo morning bike ride, Edie was hit head-on by an SUV. The driver was momentarily blinded by the sun. Edie broke seven vertebrae in her neck and back and 11 ribs; her legs were torn up, her spine crushed. Her bike helmet is in eight pieces; it is truly a miracle we still have her with us.

Since the accident she has had several emergency surgeries. Edie is currently paralyzed from the chest down as a result of her spinal cord injury. She still wears the metal halo brace, to help her heal. As she said, she is super-lucky to have "all her marbles".  And she really does.

Recovery from this kind of accident is often painful, lonely, and overwhelming. In addition to a daily regimen of PT, OT and other therapies, Edie is handling mountains of paper work, insurance claims, legal issues, and worrying who will care for her beloved cats. We expect her insurance settlement will barely cover a year of her recovery.  And her expenses mount by the day.

According to the Christopher & Dana Reeve Foundation, the yearly expense for someone with a spinal cord injury like Edie’s (paraplegia) is $113,423.  Many expenses and treatments are simply not covered at all: home modifications to accommodate a wheelchair; adapting a vehicle to be driven with hand controls; ongoing out-of-network healthcare needs; and the best rehab she can get.

If you know Edie you know she is dead set on 100% movement of her arms and hands and mastering that wheelchair (you know she will).  Every day she progesses a little further: pulling herself up in bed, getting in and out of a wheelchair.  Paralysis and no feeling in her core makes this unfathomably hard and slow work.  She's told us that every night she thinks about the increments of progress she is making.  It is her hope that one day she will be able to move to a rehab facility that specializes in spinal cord injuries.  After that she will move to a ‘transitional’ house where she will learn – living with others with similar injuries – how to regain her everyday freedom and independence: cooking, bathing, driving, and living her best life.

Reminder: we’re talking about Edie. Edie Perkins! The woman who some years ago got on her bicycle in Portland, Oregon one day then RODE TO BROOKLYN!!

We have all said it to each other since we heard about the accident: if anyone can do this, Edie can.  If anyone can face the hardest physical challenge of their life, Edie can.  If anyone can find the strength, Edie can.

Her grit and focus humbles us all.

Edie deserves the best.  We started this fund  because of you.  We created this fund in response to all the messages:  from those who have run with her, cycled with her, lived with her, worked with her, and loved her, and want to help.

Every single donation will go directly to Edie and will be used at her discretion for her recovery.  We want to ensure she gets the best from our health care system,  insurance company assistance, or a tricked-out racing wheelchair.  We are here to support her as she continues her long-held tradition of sailing out front, while we eat her dust, as she carries on with the determination we’ve come to expect.

We want to ensure that she has the best chance to recover to be her best body and best self.  It will be long; and it will be grueling.

Please show her the love. Donate Now.

Thank you for all the kindness, prayers, visits, and positive messages so many of you have sent and shared. to Edie.  Please keep up the missives of support and motivation to her.  She truly loves hearing from each of you.  We promise to keep you updated regularly on Edie’s progress.  We know how many people are rooting for her.

Let's do this and help Edie regain an independent, active, and beautiful life.

Your donation today will ensure that can happen.

With endless gratitude,

Rose Else-Mitchell, Kim Goodman, and Edie
XXX

roseoftheworld@hotmail.com
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Edie rocks it at the Naples Half Marathon! 1:13. And only eight months since her devastating accident. #beinspired
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If you haven’t heard ... Edie is racing again! Yes. Seriously!

Check this out:
http://www.naplesnews.com/story/sports/2018/01/12/ndn-half-marathon-paralysis-wont-stop-edie-perkins-racing/1015643001/#_=_

And it’s not even been a year!

Thank you for all your support - and if you fancy for this, her latest inspiration.
The Edie machine is BACK ...
Training for the race
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All Edie Followers:

Edie shared this update on New Year's Day. Because that is a darn good day for an update:

“It’s been four months since I’ve been home from the hospital. How that happened, I have no idea. That’s the same amount of time I was in the hospital! Expelled from the Rehab Womb, time passes differently. To say the least. In some ways I feel stuck, not accomplishing as much as I'd hoped. In other ways, I’m aware of the progress I’ve made.

The spinal cord Injury (SCI) vets warn that rehab doesn’t get real until you’re home. Umm, yes. What they say is true. I knew it would be. But I had no idea how true.

The first few weeks were brutal. I measured progress by length of time between meltdowns. First is was hours, then days, and finally weeks. Well, maybe not weeks. My roommate still probably hears me swearing and ready to throw things in fits of rage at least once a week. At first, it was how long and hard it was to do the simplest tasks that had me whaling like a two year old. Getting dressed, going to the bathroom, cooking, cleaning all took forever and they were so damned hard. They still take forever, and they’re still hard. But I’ve definitely gotten a little speedier at it all — and things have gotten much, much easier. But more than that, I’ve grown accustomed to how slow and tedious it is to function as a para.

As challenging as it all is, being home and moving on is where I want to be. Some of the most meaningful and memorable accomplishments and milestones so far include:

* (week 2) the first time I got through my bathroom routine alone — which included the scary transfers from my chair to the toilet and the shower bench back to the chair

* (week 3) the first time I ‘tripped’ on a curb and fell out of my chair into the street. I knew this was a possibility and had been petrified about it happening for a long time. In the end it was nothing. People rushed to my aid and got me back in my chair, unscathed, in no time.

* (week 4) my doctor figured out the right dosage of gabapentin to alleviate the evil and incredibly debilitating nerve pain I’d been experiencing for the previous couple of months. I consider this Life-changer #1.

* (week 6) I took on my first consulting project, working on a very light part-time schedule. In the new year, I hope to take on more work.

* (week 8) Life-changer #2 was when I was able to use a public restroom for the first time. This entails pulling down and up pants in wheelchair/on toilet. This accomplishment freed me to go out on day-long excursions with friends. Monumental.

* (week 12) falling out of my chair at home alone and doing my first floor-to-chair transfer. Another thing I’d feared for a long time. Being able to get back in my chair was a thrill. Took a couple tries and could definitely use some finesse, but still.

* (week 16) my first plane ride. My friend, Amy May, helped me get this monkey off my back by escorting me to FL to be with my parents for a month over the holidays.

* (also week 16) I started training for my first race using a handcycle — a handcycle that was given to me by my Veselka teammates. I’m doing the Naples Daily Half Marathon on January 14. Very excited!

I anticipate Life-changer #3 will be getting my driver’s license. I’ve been taking driving lessons and plan to take my DMV test when I’m back from FL in late January.

You have no idea —no idea! — how incredibly grateful I am to my friends and family for all their support. Without it, I would not have been able to accomplish what I have. Due to everyone’s GFM contributions, I’ve been able to remodel a bathroom, build a ramp into my house, buy the medical supplies I need, take driving lessons and more than anything, I’ve been able to support myself while I focus on my ongoing physical therapy and mastering the skills I need to be independent. The ramp, the bathroom, the supplies, and being able to focus on getting stronger improves the quality of my life daily. Thank you!

I am also incredibly grateful to those who stayed with me in those early days at home, visited me, and helped me organize my house to make my things accessible. I continue to be overwhelmed by everyone’s generosity. It humbles me, it motivates me and it makes me feel so very loved.

Today is the first day of 2018. I wish that sending 2017 out the door could change what happened to me. But it won’t. The year was a life-changer for sure. Devastating, but also enlightening. I’m grateful for the good things: The unbelievable network of friends and family who have supported me through all of this; the connections I’ve made with old and new friends; and the chance to reflect on life and how to make it as meaningful as possible going forward. In 2018 I hope to get far enough along in my recovery that I can begin to pay forward all that you have done for me.

Happy New year!
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As we close the year, reflecting on what we did or didn't do, planning those resolutions for 2018 about getting fit or getting a new job, I wanted to take a few minutes to think of Edie.

Flash back to April 2017 and the shocking news of Edie's accident, her clear brush with mortality; months of rehab; negotiating with insurance companies, learning that in California there is no legal recourse or coverage to help ease the costs of her recovery; her move to transitional rehab; returning to her LA bungalow and modifying it to work with her wheelchair; learning to drive a car fitted out for her; doing everything simple like it was the first time, like picking up a few groceries or washing your hair; in short, learning to live again, differently.

Excitingly, thanks to Etsu and team who raised $2600, Edie now has a hand-cycle (see pic!). It's fantastic to see her back in the saddle ...

This journey has been a momentous one and as we know, Edie has taken it on with that recognizable determination, curiosity to solve problems, and what feels to us when we talk with her, that good humor that amazes us all. But of course it is so much more complicated than that ...

Thank you to everyone who has helped thus far in so many ways, including here on GFM.

Edie is spending the holidays with her family in Florida, so she took her first plane trip since the accident and now is adapting to another home. Here she is ...

HAPPY NEW YEAR, EDIE!

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$224,985 of $250,000 goal

Raised by 1,222 people in 9 months
Created May 20, 2017
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