Ray Monge
Donation protected
Hello everyone.
Thank you for being here for Ray.
As many of you know by now, he had a severe brain bleed in the cerebellum area on May 11. He had a successful surgery to treat the condition, spent two weeks in the ICU and is now in trauma recovery (TRACU) at Legacy Emmanuel Hospital. He is a fighter now as always.
We are accepting that his recovery will be a marathon and we are taking it day-by-day. Here is what we know so far.
Ray has been diagnosed with a rare neurological disorder called Locked-in Syndrome (LIS).
This means he is conscious and that he can see and hear but cannot speak or respond. He will be paralyzed for the rest of his life. We encourage you to read about the syndrome to better understand the gravity of the situation Ray is facing.
Locked-in Syndrome: http://brainfoundation.org.au/disorders/locked-in-syndrome-lis
His eyes have been open intermittently. He is mostly breathing on his own, but is still getting air through a tracheotomy in his throat. He has been fighting pneumonia off and on since he first came to the hospital and will continue to do so.
After weeks in the hospital, and likely many more to come, we have become aware that his expenses will be astronomical. We anticipate long-term hospitalization, medical equipment, rehab, 24-hour long-term care, and much, much more for the rest of his life.
It’s going to be a long road. Coach Ray lived a simple life dedicated to helping others. We hope now that his friends, loved-ones, and the community he served will be there for him in his time of need.
We humbly ask that you help if you can. We are incredibly grateful for your love and support.
Thank you for being here for Ray.
As many of you know by now, he had a severe brain bleed in the cerebellum area on May 11. He had a successful surgery to treat the condition, spent two weeks in the ICU and is now in trauma recovery (TRACU) at Legacy Emmanuel Hospital. He is a fighter now as always.
We are accepting that his recovery will be a marathon and we are taking it day-by-day. Here is what we know so far.
Ray has been diagnosed with a rare neurological disorder called Locked-in Syndrome (LIS).
This means he is conscious and that he can see and hear but cannot speak or respond. He will be paralyzed for the rest of his life. We encourage you to read about the syndrome to better understand the gravity of the situation Ray is facing.
Locked-in Syndrome: http://brainfoundation.org.au/disorders/locked-in-syndrome-lis
His eyes have been open intermittently. He is mostly breathing on his own, but is still getting air through a tracheotomy in his throat. He has been fighting pneumonia off and on since he first came to the hospital and will continue to do so.
After weeks in the hospital, and likely many more to come, we have become aware that his expenses will be astronomical. We anticipate long-term hospitalization, medical equipment, rehab, 24-hour long-term care, and much, much more for the rest of his life.
It’s going to be a long road. Coach Ray lived a simple life dedicated to helping others. We hope now that his friends, loved-ones, and the community he served will be there for him in his time of need.
We humbly ask that you help if you can. We are incredibly grateful for your love and support.
Organizer
Robert Jason Dino Monge
Organizer
Portland, OR