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Cassandra Smith's Fund

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Jason Smith and Josy McDonell anxiously awaited the arrival of their little girl. Josy's due date Feb 15th came and went, and finally on Feb 23rd Josy was induced. At 9:20pm she gave birth to a 6 lb 12 oz baby, whom they named Cassandra after Jason's sister who had passed away.


They soon realized all was not well with their little angel, as she was crying a lot and was developing blisters on her skin. She was in so much pain she wasn't keeping any food down, and quickly ended up in the NICU of BGH. 

The unofficial diagnosis is Epidermolysis bullosa, a skin condition that affects 1 in 50 000 births, to varying degrees of severity. Known as butterfly babies, because their skin is as fragile as the wing of a butterfy, any friction can cause tearing or painful blistering of the skin. 


Cassandra will soon be sent to Sick Kids in Toronto to see a skin specialist and get further diagnosis, but this is an incurable condition. She will have this the rest of her life. 


Jason was working multiple jobs to prepare for the baby's arrival, but nothing prepared them for needing to make trips to Toronto, and having to find a place to stay and having to feed themselves while there. Some of this may be covered by medical insurance, but not all. 

I am creating this fund to help them raise money for the extra expenses, such as gas, food, buying soft blankets and specialty items that Cassandra will need, as some normal items will be too harsh for her tender skin. 

Thank you for reading this and please share among your friends. Any donation helps, and any donation is appreciated. Jason and Josy have so much on their plate right now, I would just like to help take care of some of the financial worry.

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Donations 

  • Anonymous
    • $1,000 
    • 8 yrs
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Organizer

Maurene Rose
Organizer
Belleville, ON

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