Support Hafey Thormarsdottir
Comments from the mother of Hafey Lipka Thormarsdottir
Our daughter Hafey has not had a virus infection before this, she was only healthy.
ITP ( Idiopathic Thrombocytopenic Purpura ) is very rare and mysterious sickness. Doctors do not know what is causing it. It came on so suddenly around April 20th with small blood spots under her skin appearing on her legs and hands mainly.
She is 13 years old, so her youth is in her favour.
They removed her spleen to try to shut down immune function. They did another operation to correct the bleeding from open veins, as she was bleeding internally. It is desperate now, she is not making platelets on her own. She is receiving daily a continuous supply of haemoglobin and especially platelets from about 15 donors on average.
She has been in coma for more than 2 weeks. The bleeding in her brain made too much swelling that is why they keep her asleep.
The doctors began to add new drugs for supporting the creation of platelets affecting her bone marrow and B cells.
So far there is no substantial improvement in respect to solving the ITP problem.
We are truly grateful for your support.
Dear friends, who freely offered your help for our family,
From the bottom of our hearts we, the parents of Hafey Lipka Thormarsdottier, would like to express our sincerest gratitude to each one of you who have given your unconditional contribution in support of expenses in connection with our daughter’s serious illness. Thank you ever so much for what you have offered with a selflessly giving heart!
Hafey has been a healthy child until suddenly like out of the blue sky this sickness appeared for which the doctors still could not find a solution to heal it. But the overall health condition of our daughter who has been in coma for three weeks has improved greatly after the bleeding in the brain so that she can speak now again, while it is not yet possible for her to stand or to sit without support.
The goal of the fundraising initiative was fulfilled within 10 days due to each one of you freely giving from your heart – according to what you felt would be appropriate in the given situation. As parents of Hafey we are deeply thankful for your readiness to support our family even though in most cases you do not even know us personally.
What we wish for you to receive in return is not only our endless gratitude but also the confidence in respect to what is possible if we help each other in times of need. It is indeed essential that we protect each other because what had become a reality for our family with one of our children getting sick and doctors being more or less at a loss how to properly treat this illness might also become a reality for others in a situation where they are challenged to their limits.
We are certain that besides your having given a generous monetary donation most of you have also offered a prayer or sent a good thought to Heaven for Hafey’s recovery, for which our whole family is most grateful, especially because the healing centred on the internal support is the only way to reach lasting recovery not only in the case of our daughter Hafey but so many other people who suffer from a sickness with the roots originating on internal levels which go far beyond the individual and the immediate surroundings of a person.
Thank you again to each one of you for having shown your love for our daughter Hafey and for our family in such a substantial way – for which we are surely indebted to you.
May Heaven reward you abundantly for all your good deeds in the form of blessings that enrich your lives based on your showing a loving and caring heart for other people’s internal or external needs.
Thormar and Lenka
Dr's trying another drug for supporting the creation of platelets affecting her bone marrow. 20 drugs and blood products pouring 24/7 She is developing pneumonia because of too much of sleeping drugs. Main problem is now to save her brain without an operation. She is in very critical stage. They are now starting to wake her up which takes several days!
Her mother is staying by her side day and night and her father Thormar is also dedicated to providing all the support he can, to take care of the other five children. They need help with time off of work from the fishing sales business, transportation, meals and alternative therapy expenses that insurance doesn't cover. We are grateful in advance for your thoughts and prayers. Your help and kind consideration will be forever remembered. Thank you endlessly.