Help Jill Overcome SMA

$6,116 of $37,000 goal

Raised by 77 people in 36 months
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Meg Williams
on behalf of Laura Mackay
 FREDERICK, MD


A few years ago, Jillian was diagnosed with Spinal Muscular Atrophy, type III.  SMA is a genetic condition that slowly causes her muscles to fail.  They were shocked, at 18 months her only symptom was that she walked around their Victorian farmhouse with bowlegs, but the doctors soon found out the root cause was SMA.  SMA is degenerative, which means that over time Jill will gradually rely on her wheelchair more and more, and eventually lose the ability to walk altogether.

Jill craves independence.  She wants to be able to take her wheelchair to her doctor's appointments, shopping, and to visit with friends and family .  She wants to be able to shower on her own.  To do this she needs the right equipment, such as an accessible shower and bathroom, and a van capable of transporting her very heavy wheelchair.

Her mom stays home with her, she has Jill and Jill's little sister to look after and help get to doctors' and physical and occupational therapy appointments. Jill used to love ballet and gymnastics, but is having trouble participating lately, luckily she also loves books and coloring and painting at home, as well as cheering on her little sisters' accomplishments.

This is a brilliant girl. I can't explain to you how smart and motivated she is. All she wants are very basic things that we all take for granted on a daily basis-- the ability to shower on her own, get around her school and hang out with her friends on the playground, get dropped off and picked up by her mom in the van. Please help us make this girls dreams of a "normal" childhood a reality.

We are looking to raise $50,000 to help the family get a gently-used wheelchair accessible van. When her mom told me how much they cost, I almost fell out of my seat, I couldn't believe it. 

We also need to make some updates to the house for Jill's wheelchair.  Fortunately the family was able to move into a one level house that is much more chair-friendly, but it still needs upgrades to the bathrooms and other places around the house. Please help us make this childhood one of fun and friendship and joy, like childhood should be!
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From Laura:

I have great news!!! We have found a contractor for the bathroom remodel! They are going to start work in the next month or so. Thank you all so much for your help in making this possible. The van has made such a big difference for Jilly already, and the bathroom will too. Thank you!!!!!!
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From Laura:

Exciting news! We've found a potential van!! I just looked at it yesterday and it seems like a great fit for us. It's a 2007 Dodge Grand Caravan with a side entry and it only has 27,000 miles. I took a look at it yesterday and it looks to be in great condition. And the best part, it's only $16,900, which is so much less than most used wheelchair vans. This might be the one :)
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From Laura:

Hi everyone! It's hard to believe the summer is almost half over now. We've had a blast so far. Jilly started the summer off with her week at MDA Camp. She had so much fun- swimming, fishing, and hanging out with her friends. She even got to dress up for the dance.

Next we drove down to Goose Creek, South Carolina to visit the grandparents. We spent the week going to the beach, doing puzzles, and crafting. We also went bowling, which thanks to Royal Lanes Goose Creek was amazing. They had a special wheelchair lane that allowed Jilly to drive her scooter right up to the lane. There are so many challenges to overcome when we go out, it's nice to find somewhere that has made things a little easier.

James and I also took a trip to the conversion van dealer. We were able to check out the different kinds of vans that are available and get a feel for what we will need. It was a little overwhelming, but very informative. We've still got a long way to go, but thanks to all of you, we are off to a great start. Thank you!!!!
Looking stunning for the camp dance
Fishing at camp.
Jilly bowling.
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From Laura:

I have some exciting news! A friend of mine, Lisa Rector, is not only a generous and kind friend, she is also a very talented author. Her third book is coming out in April, and she has decided to donate the profits from the pre-orders and her royalties from April sales to help Jilly's fund. Please take this opportunity to discover a new series and help Jilly at the same time. Even if her books are not your usual taste, I'm sure you have someone you know that would enjoy a great Fantasy Romance series.

http://perpetualgardener.blogspot.com/2016/03/help-jill-overcome-sma-book-release.html
Lisa's upcoming novel Master of Time
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Jerri Burgess
24 months ago

That's a great price, when I was thinking about getting one for Dominic, even used they were like 60,000

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$6,116 of $37,000 goal

Raised by 77 people in 36 months
No Longer Accepting Donations
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Created September 15, 2015
Meg Williams
on behalf of Laura Mackay
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$50
Anonymous
23 months ago (Monthly Donation)
$25
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23 months ago (Monthly Donation)
JB
$50
Jerri Burgess
23 months ago (Monthly Donation)
$50
Anonymous
24 months ago (Monthly Donation)
$100
Anonymous
24 months ago
$25
Anonymous
24 months ago (Monthly Donation)
JB
$50
Jerri Burgess
24 months ago (Monthly Donation)
$50
Anonymous
25 months ago (Monthly Donation)
$25
Anonymous
25 months ago (Monthly Donation)
JB
$50
Jerri Burgess
25 months ago (Monthly Donation)
Jerri Burgess
24 months ago

That's a great price, when I was thinking about getting one for Dominic, even used they were like 60,000

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