The Gibson Family Fund
Donation protected
First and foremost let's welcome Andrew into the World! After a long journey to fruition. Congratulations to Toby and Amanda and their newborn.
The road ahead is long and arduous, a fleet of complications have arisen and are needing to be dealt with. Toby, Amanda, Family and Friends have the heart, patience and time to help, but as in most cases money and money based tension can be a stressing factor.
This fund is to help Toby and Amanda deal with the rising costs of their stay in NICU with their newly born son Andrew and the continuing rehabilitation and therapy necessary for Andrew to live his best life.
Here's what's going on:
"Here is what Andrew is dealing with. He was born at 1 day shy of 31 weeks. We still do not have a diagnosis on what he has and will take several rounds of test and weeks and months of waiting to determine a name or names of his condition.
His heart is not pumping enough blood to his lungs as they would like, but that can change as he gets older.
His brain has all the parts and pieces but are not fully developed yet. We won't know for a few weeks or months how that will affect him. We need to see if he can eat on his own, that is a very good sign to look forward to for brain development.
He has something extra on his chromosome 14, which is very rare, that may be the key to his condition or NOTHING at all. They want to do a couple of Genetic tests of his blood. Those tests once taken will take 4 to 8 WEEKS for results that may be inconclusive. There are other tests that other doctors want administer that will also determine what he has.
He is doing better on the respirator and the Doc wants to get him off of it if they can. They are just giving him the amount of help he needs and not much more to strengthen his lungs. The doctor says it is rare for a premie at his age to still need oxygen. They still don't know if he will out grow it or have to have oxygen support the rest of his life.
They need to do a bone structure exam of his body.
They THINK his knee is backwards. So instead of bending where your heel goes towards your butt, his toes go towards his chest and the tibia and fibula are reversed. He has clubbed feet on both legs, later he is going to have to have surgery to fix all of this and then a road of recovery.
The Physical Therapist and Occupational Therapist are an amazing team. They are currently working on special, hand made, splints to help with his club feet.
Also, his hands are malformed, but have been improving with physical therapy. His fingers are curled in and do not stretch outwards naturally.
His hand splints have been doing wonders. We have seen a great increase in mobility.
Andrew is more than likely to be in the NICU until January but it maybe longer. After that there will be a long road ahead of us; working with Children's Hospital to give him the medical attention that he will need."
"We just want to thank everyone for their help and support. Whether that be with money or well-wishes. Andrew is improving everyday. We didn't know if we would have even an hour with him after he was born, so to have him here and growing is a medical miracle in itsself. We can't say thank you enough for all that you are doing to help us out." -Toby and Mandy
The road ahead is long and arduous, a fleet of complications have arisen and are needing to be dealt with. Toby, Amanda, Family and Friends have the heart, patience and time to help, but as in most cases money and money based tension can be a stressing factor.
This fund is to help Toby and Amanda deal with the rising costs of their stay in NICU with their newly born son Andrew and the continuing rehabilitation and therapy necessary for Andrew to live his best life.
Here's what's going on:
"Here is what Andrew is dealing with. He was born at 1 day shy of 31 weeks. We still do not have a diagnosis on what he has and will take several rounds of test and weeks and months of waiting to determine a name or names of his condition.
His heart is not pumping enough blood to his lungs as they would like, but that can change as he gets older.
His brain has all the parts and pieces but are not fully developed yet. We won't know for a few weeks or months how that will affect him. We need to see if he can eat on his own, that is a very good sign to look forward to for brain development.
He has something extra on his chromosome 14, which is very rare, that may be the key to his condition or NOTHING at all. They want to do a couple of Genetic tests of his blood. Those tests once taken will take 4 to 8 WEEKS for results that may be inconclusive. There are other tests that other doctors want administer that will also determine what he has.
He is doing better on the respirator and the Doc wants to get him off of it if they can. They are just giving him the amount of help he needs and not much more to strengthen his lungs. The doctor says it is rare for a premie at his age to still need oxygen. They still don't know if he will out grow it or have to have oxygen support the rest of his life.
They need to do a bone structure exam of his body.
They THINK his knee is backwards. So instead of bending where your heel goes towards your butt, his toes go towards his chest and the tibia and fibula are reversed. He has clubbed feet on both legs, later he is going to have to have surgery to fix all of this and then a road of recovery.
The Physical Therapist and Occupational Therapist are an amazing team. They are currently working on special, hand made, splints to help with his club feet.
Also, his hands are malformed, but have been improving with physical therapy. His fingers are curled in and do not stretch outwards naturally.
His hand splints have been doing wonders. We have seen a great increase in mobility.
Andrew is more than likely to be in the NICU until January but it maybe longer. After that there will be a long road ahead of us; working with Children's Hospital to give him the medical attention that he will need."
"We just want to thank everyone for their help and support. Whether that be with money or well-wishes. Andrew is improving everyday. We didn't know if we would have even an hour with him after he was born, so to have him here and growing is a medical miracle in itsself. We can't say thank you enough for all that you are doing to help us out." -Toby and Mandy
Organizer and beneficiary
Mario Marchio
Organizer
Bellevue, NE
Toby Gibson
Beneficiary
