Love for Avalynn
On Thursday, January 28th, Avalynn was taken to the pediatrician again. This time there was a small amount of blood in her stool. Plus, her eyes were swollen, bruises started to appear on her body and there were small red spots everywhere. (We now know these are called, petechiae.) It was all dismissed as a virus! By Saturday morning, after more than a month of not being heard, her parents demanded blood work! Within an hour of having her blood drawn, they received a call to immediately return to the ER. After arriving, Avalynn was quickly transferred to All Children’s Hospital in St. Pete where it was concluded that she has Acute Lymphoblastic Leukemia Pre-B. Within the first three days at All Children's, Avalynn received multiple platelet and blood transfusions. She also battled fevers that reached 105 degrees, and endured two surgeries (one for a bone marrow biopsy and another to insert a chemotherapy port and spinal tap). On Tuesday, February 2nd, Avalynn began what will be two and a half years of Chemotherapy treatments! The current hospital stay will be a minimum of 11 days and she will have multiple scheduled 4-5 day stays in the future. She will also be brought to St. Pete from Sarasota 2 times a week for the next six months for chemotherapy treatment. After that, she will take oral doses of chemo daily with only one visit to St. Pete per month for the remainder of her recovery.
Anyone who knows Avalynn knows that she is a spunky little lady with a lot of fight in her. She is full of life and one of the most loving children you’ll ever meet. We are sure that she will be just fine, as are her doctors. However, she and her parents have a long road to recovery ahead of them. Her daddy is a police officer and her mommy is an elementary school teacher. They live on a fixed income and are in desparate need of financial support from the community they each serve so willingly. Please consider donating towards their uncovered out of pocket expenses, so that they may focus on healing their baby girl, Avalynn. Any amount is helpful and appreciated. Thank you in advance for your love and generosity. They are forever grateful!
Saturday marked 3 weeks since our lives were turned upside down and it's amazing how much has changed since then. So many things that I'm strangely thankful for. Our child, even though receiving chemotherapy, feels SO much better. I'm thankful for her port, so that she doesn't have to be pricked. I'm thankful for all of the amazing doctors and nurses that take care of her day and night. I'm even thankful for her chemotherapy, as I know it is healing her. I'm thankful to be done with the first two, awful weeks and out of the fog that consumed us. It's been so humbling to see how many people have stepped us to support us in so many different ways. We've had people take care of our house and our dogs, send us the most amazing dinners while we are in the hospital, send us thoughtful cards and gifts, donate money, start fundraisers, spend time with us, and most importantly pray for us. I wish I could sit down and write a thank you to each of you to tell you what it has meant to us. Each action has made this situation so much more tolerable and shown us how many kind people there are...many of who we haven't talked to in a while or don't even know. Thank you from the bottom of our hearts. <3 None of it has gone unnoticed.
On another note...
Avalynn has had another fantastic two days! More and more of her personality is coming back and it has been fabulous. She's enjoyed playing with her babies, going on LOTS of walks, and even made a little friend on our floor. Oh and I can't forget....she's found a love for lollipops (thanks to the sweetest nurse who brought her this huge one). Daddy even went out and bought her more today for special treats.
We are still scheduled to go home on Tuesday and are all equally excited to sleep in our own beds. We will be back on Wednesday for a follow-up with an ENT to check on her vocal chords (her voice changed a little after the last dose of chemo and so they are monitoring it) and then on Friday for our clinic visit.
#braveave #avathebrave #avalynnkay #prayersforava #loveforava #somedayistoday #AvalynnsArmy
Please pass this along to the family on Facebook is a wonderful family Cannonball Kids Cancer. They are from the Orlando area and are working hard for kids cancers. They might be a good source of comfort and info for the family.