Charlie Bolton's Fund

£22,951 of £22,000 goal

Raised by 368 people in 44 months
Charlie is 6 years old and has spinal muscular atrophy type 2, which is a genetic condition that causes muscle weakness and progressive loss of movement. It occurs due to deterioration in the nerve cells (motor neurones) connecting the brain and spinal cord to the body's muscles.
We are raising money for ongoing equipment not funded for by the NHS. Charlie currently has a specialized powered wheelchair which we successfully fundraised for 5 years ago, this needs to be upgraded  to allow Charlie to keep his independence and mobility which is vital to his quality of life. Please go to   www.charlie4life.co.uk for more on his story.
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I just want to say a massive thank you to everyone that has donated and/or helped us reach such an amazing amount! We are well over halfway and this wouldn't have been possible without all of you.
The support we have had and continue to have has been overwhelming.
You are all amazing and there are not enough words to express how grateful we all are.
Thank you, thank you, thank you. Xxxxxxxxxxxx




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So you may of all heard there was a marathon at the weekend, some call it a fun run - If say compared to a holiday in North Korea then perhaps there is some fun to be had ( sorry Kim un Jong but it's nothing like the brochures! ).
But if like me fun is usually a prequel to size and a chocolate bar then you may struggle to see why anyone would put themselves through such a gruelling challenge.

One lady took on the challenge to help our very own Charlie Bolton.
The incredible Thomasin Freeman went through 5hrs 30minutes of the most intense physical and mental pressure to raise money to help Charlie to continue to push the boundaries and be him , not the boy with SMA. Not to mention all of the months of training and preparation she undertook to ensure she not only make it to the end but she did it in such an impressive time.

Charlie was there to cheer Thomasin on , complete with matching Batman outfit for Charlie! He was so excited to see her running with all of the other superheroes. Batman has been Charlie's favourite superhero for years and although I don't think that will change anytime soon ( there must be some merchandise he doesn't have) but to Charlie and his whole family Thomasin is the embodiment of what it is to be a real hero.


It is all to easy to see the travesties that occur daily throughout the world and be overwhelmed with a feeling of helplessness, that as individuals there is nothing we can do to change things.
Well Thomasin is proof that one person can make the mightiest of impacts, because she didn't just run 26miles on one day, she spent time away from her family in order to train for the marathon and raised a fantastic amount of money aswell. This money will help to get Charlie things that don't just make his life easier but things that allow him something all children are entitled to - to be free from worry and just be children. He doesn't have to be excluded from activities because he can't take part, and he can enjoy the friendships he has made, particularly with Christopher, Thomasin's son.


Our journey with SMA started 6 years ago and it hasn't been an easy one, however the reason we can continue to not just struggle through it but to laugh everyday and enjoy the world with Charlie is because of people like Thomasin. Her bravery and kindness have given us much more than she can know.


So from all of us here - Thomasin Freeman we thank you (and probably owe you a G&T or 2!) xxxxxxxxxxxxxxxx


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£22,951 of £22,000 goal

Raised by 368 people in 44 months
Created April 26, 2015
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