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Going Green for Cian

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As many of you may know my son cian has a rare condition called ataxia- telangictasia. There is at present no cure or treatment for this orphan disease. It's life limiting and he is declining. He can only be treated for the symptoms of other conditions which make up this condition such as immune deficiency, ms, cf, cerebral palsy, muscular dystrophy and depression. I've decided that my son deserves to live the best life possible. Obviously this is something any parent can earlier decide. Unfortunately there isn't anything I can do for him in this country due to laws and limits. There are no limits in other parts of the world.. so we are going to America to avail of other medical help and advice. I'm asking for help as a mother and as a friend to help me take my beautiful brave boy to San Fran for a few months. This will help cian live a longer happier healthier life.. will keep him with me longer and in this world for longer than the doctors prognosis. I refuse to just give up and let life run its course!! Please help us get there..
thank you so much.. Lynda and cian
Forever grateful for all your support and love x❤️️❤️️

Organizer

Lynda Mcintyre
Organizer

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