Help for my daughter Kenza

$5,000 of $5,000 goal

Raised by 33 people in 48 months
Hi!

This is my daughter, Kenza. She is 21 months old and has an undiagnosed genetic disorder. We are trying to raise money to help get her a diagnosis and stay afloat with bills after losing insurance.

Kenza's story: She was born November 2013. She was 8lbs 7oz. I was in labor/delivery 26 hours which resulted in severe meconium aspiration. In addition to that, her clavicle was fractured, had extreme swelling to her head and face, and severe blistering to her hands and feet. She was released from the NICU 9 days later.

Around 5 to 6 months of age I noticed my daughters spine being curved and her not reaching any milestones. Fast forward to now, my baby is wheelchair bound. Still does not roll, crawl, sit or talk. She eats only pureed foods. She has very bad scoliosis as well. Her weight fluctuates due to poor eating and a feeding tube is in her future. She has been tested for SMA, Myotonic dystrophy, Prader-willi syndrome, metabolic disorders and also had a muscle biopsy done. And we still know nothing. Her brain is not expanding as a normal child's should and MRI'S suggest a neuro degenerative disorder.

We just lost our Medicaid last week and are in the process of getting private insurance, which is very expensive. We will now be paying out of pocket for office visits to pediatrician, neurologist, orthopedist, geneticist, ophthalmologist, gastroenterologist as well as physical and occupational therapy, feeding and speech therapy. We will also now be paying for equipment as well and we have a back brace we will be needing soon.

Anything and everything helps at this very moment. I'm trying to remain hopeful through this scary but amazing journey we call life.

Thank you for reading our story.

The Hocini family.






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We were just aired on the local news!! Yes, the local news. That is huge.

An update on Kenza:

The last few months have been rather difficult. Kenza has fallen ill 3 times and having to be hospitalized with the last being the worst. She had oxygen levels in the 70's and required an ambulance ride to the hospital.

She is still undiagnosed but as beautiful as ever. Her MRI shows many changes in her brain with the latest showing signs of Alzheimer's and Dementia. She is having over 100 seizures a day and is on medication. We are working to raise funds for CBD oil and a trip to the Mayo Clinic for further help. Anything helps and is very much appreciated.
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$5,000 of $5,000 goal

Raised by 33 people in 48 months
Created August 21, 2015
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$1,055
Michelle Craft
29 months ago

Even if things have changed one thing will never change, I will always Love Kenz & Yas.

$50
Donna Moore
33 months ago

All the best to your beautiful family.

TC
$50
Tom Cox
33 months ago
AS
$50
April Smith
34 months ago
DV
$1,000
Danny Venz
34 months ago
$100
Anonymous
34 months ago
SW
$100
Suellen Wrinkle
34 months ago
TC
$50
Thomas Cox
34 months ago
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