Jessica's Medical Fund and Recovery

$24,362 of $100,000 goal

Raised by 296 people in 28 months
Daniel Livingstone
on behalf of William Livingstone
 EMERSON, NJ
About a week ago Jessica Livingstone was admitted to the hospital and diagnosed with a disease called Moyamoya.  Moyamoya shrinks the main blood vessles going to her brain, making it hard for the brain to receive blood. This disease has cused Jessica, a teenager of 16, to have a stroke the week of Januarary 16th.   Sadly,  that is not all.  Later on that week, due to the stress of being in the hospital, the area of the brain hit by the stroke swelled more and Jessica had to be put in a medically induced coma using a ventilator to help her breathe.   In the future, once Jesscia regains full consciousness and the swelling in the brain decreases, she will need physical therapy.  And, should she fully recover from this ordeal, she will need to have two neurosurgeries to graft blood vessels to her brain to help regulate blood flow.  At this time it is unclear how much this will all cost as this terrible journey has just begun.   This page has been set up by her big brother who loves her and wants to do anything and everything to help her.  Please give whatever you can to help, and please keep my beautiful sister in your prayers.  We are striving each and every day to give her the full and healthy life she deserves.
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Hi Everyone:

Happy 2019! We hope you've all had a blessed holiday season! My family and I wanted to send you an update on Jessica.

She went back to school full-time in September and was able to be a cheerleader again-a dream of hers since she first got sick, It has been a struggle for her--because she has been in a bed for such a long time, she has had to deal with severe fatigue and she has been diagnosed with Scoliosis. She is also going to OT sessions and will start Kessler Driving Program. But, even with all that, she is a student again and will be able to graduate with her class in June-two things we thought may never happen.

As for us, we have been trying to "pick up the pieces" and move forward. I have changed my major to Psychology-after the crisis my family has been in, I saw how invaluable this type of help has been to us, and I want to help others the same way. My mom works part time in order to be home more for Jess--and we are moving ahead together and closer than ever.

Jess was due to have an angiogram this month--but the doctor has decided to delay it until the summer! That was the best Christmas gift we could have received and we hope this is the start of healthier days and happier moments to come. You are all in our thoughts and we are so very grateful for the help and prayers you have extended to us. So many days we thought we may have to separate and sell our home. Because of all of you, we are still together. Have a great 2019!

Daniel
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Hi everyone,

Wanted to update you. Jessica did have her third surgery but it was not as we expected for both good and bad reasons:
The GOOD news was that the disease has not progressed since January which we consider an intervention by her grandfathers!
The BAD news is we could have either proceeded with the surgery and risk another stroke like last time-or not proceed and she could suffer a stroke if the disease progresses.

It was an agonizing decision but the three of us decided to proceed with the surgery to put preventive measures in place for the future-we thought Jessica would have wanted that.

The MIRACLE came the day after surgery when she sat up and was walking and talking! She walked out of the hospital and came home 2 days after surgery!

We are so beyond grateful to have her home and recovering--and we are now trying as a family to move forward and get back on our feet emotionally and financially.'

Jess will have another angiogram in three months and given her age, the doctors are hoping and praying with us that the disease has started to arrest and she will not need further surgeries. Please continue to pray for her. My mom prayed to mother Mary throughout this ordeal and has planed a rosebush in her honor. We have no doubt there was help from above!

Thanks to all of you for your prayers and support-attached to this are pictures from Jessica's Make A Wish Trip. She met so many animals-more than she could have ever dreamed. She so deserved it!
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Hi everyone! I hope you are all having a wonderful summer! I wanted to send an update to let you know that Jessica is scheduled to have her surgery July 10.

She will be checking in on the 8th to have a pic line put in. On the 9th is an angiogram and the 10th will be the surgery on the left front and side of her brain.

This will be Jess's third surgery-the first one went really well and we almost lost her after the second one-we don't know what to expect this time and are terrified-but it's our hope that this will be the last brain surgery she will need for a long time-if not forever.

Please keep us in your prayers-especially Jessica.
Thank you
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I wanted to post an update to let you all know that Jessica will be having her surgery the first week in July. My parents decided, along with her, that she could use additional time to gain more strength in body, mind and soul before another surgery. There is some risk associated with waiting which scares all of us, but it's no different than what we've all been experiencing this last year and a half.

In the meanwhile, we are so grateful for being able to take a breath and we are doing all we can to enjoy this time as a family. Even normal everyday family things are a luxury to us-I was able to get a "new" used car and we have spruced up the house--things we did not have time for or emotional/physical energy before this.

The pictures I've attached are from a Bronxnet Program called "Open" Jessica has wanted to speak out about Moya Moya prevention/testing, and thanks to Gabi a family friend, she was able to and was on TV for the first time! She also turns eighteen today! We are looking forward to the first family vacation in quite some time through Make-A-Wish and making lasting and happy memories before we face the hospital yet again in July.

Thank you to all of you--your prayers and support have gotten us to this happy time--please keep us in your prayers and enjoy Father's Day, Fourth of July and the beginning of Summer!
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Read a Previous Update
Amy Fred-Villegas
26 months ago
1
1

My best friend, Patti, spent 2 years dealing with the consequences of Moya Moya before she was finally diagnosed. Thankfully, 2 surgeries saved her life and she is once again living life and doing well. But it took the support of many in the Pascack Valley to help her through. We will all be praying for your family and for Jessica's full recovery.

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Arnie Korotkin
26 months ago
1
1

Family raises money for Emerson teen with rare brain disease (Passaic Valley Today) http://www.northjersey.com/story/news/bergen/emerson/2017/03/09/family-raises-money-emerson-teen-rare-brain-disease/98859030/

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Dianne Warshaver Cohen
27 months ago
1
1

I spoke with bill the other day and am wondering if mobilizing people to help in being with Jessica preparing meals or managing tasks may be helpful Dianne Cohen Inwood. This is something synagogues do & one of Inwood's board members used to organize; I would work in Inwood to organize if family wants it best way to reach me would be private message on Facebook. On Facebook I am dianne warshaver

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Kirstin Bocchino Schultz
28 months ago
1
1

Praying for Jessica and the Livingstone family. Kirstin, Kevin, Hannah and Reese

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$24,362 of $100,000 goal

Raised by 296 people in 28 months
Created January 27, 2017
Daniel Livingstone
on behalf of William Livingstone
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ZL
$100
Zephrin Lasker
9 months ago
1
1
EV
$25
Elissa Viarengo
9 months ago
1
1

Wishing Jessica all the best!

$18
Ellen Feld
9 months ago
1
1

Wishing you a happy life!

GL
$18
Gabi Levin
10 months ago
1
1

Jessica - Loved watching you on Bronxnet! We are so proud of your bravery and strength and wishing you the very best in your continued recovery. In Judaism 18 means chai (life) We wish you happiness, health and healing for the wonderful life you deserve. Hope to meet you soon! Gabi & Chris

AH
$50
April Humphrey
10 months ago
1
1

Hope we can talk again soon! May God bless you always! The Humphreys

FD
$25
Francine Darsa
10 months ago
1
1
JB
$50
Jill Brady
10 months ago
1
1
KS
$100
Karen Smith
10 months ago
1
1

You are all in our thoughts and prayers.

MS
$25
matt schinelli
10 months ago
1
1
Amy Fred-Villegas
26 months ago
1
1

My best friend, Patti, spent 2 years dealing with the consequences of Moya Moya before she was finally diagnosed. Thankfully, 2 surgeries saved her life and she is once again living life and doing well. But it took the support of many in the Pascack Valley to help her through. We will all be praying for your family and for Jessica's full recovery.

+ Read More
Arnie Korotkin
26 months ago
1
1

Family raises money for Emerson teen with rare brain disease (Passaic Valley Today) http://www.northjersey.com/story/news/bergen/emerson/2017/03/09/family-raises-money-emerson-teen-rare-brain-disease/98859030/

+ Read More
Dianne Warshaver Cohen
27 months ago
1
1

I spoke with bill the other day and am wondering if mobilizing people to help in being with Jessica preparing meals or managing tasks may be helpful Dianne Cohen Inwood. This is something synagogues do & one of Inwood's board members used to organize; I would work in Inwood to organize if family wants it best way to reach me would be private message on Facebook. On Facebook I am dianne warshaver

+ Read More
Kirstin Bocchino Schultz
28 months ago
1
1

Praying for Jessica and the Livingstone family. Kirstin, Kevin, Hannah and Reese

+ Read More
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