Jessica's Medical Fund and Recovery
Happy 2019! We hope you've all had a blessed holiday season! My family and I wanted to send you an update on Jessica.
She went back to school full-time in September and was able to be a cheerleader again-a dream of hers since she first got sick, It has been a struggle for her--because she has been in a bed for such a long time, she has had to deal with severe fatigue and she has been diagnosed with Scoliosis. She is also going to OT sessions and will start Kessler Driving Program. But, even with all that, she is a student again and will be able to graduate with her class in June-two things we thought may never happen.
As for us, we have been trying to "pick up the pieces" and move forward. I have changed my major to Psychology-after the crisis my family has been in, I saw how invaluable this type of help has been to us, and I want to help others the same way. My mom works part time in order to be home more for Jess--and we are moving ahead together and closer than ever.
Jess was due to have an angiogram this month--but the doctor has decided to delay it until the summer! That was the best Christmas gift we could have received and we hope this is the start of healthier days and happier moments to come. You are all in our thoughts and we are so very grateful for the help and prayers you have extended to us. So many days we thought we may have to separate and sell our home. Because of all of you, we are still together. Have a great 2019!
Wanted to update you. Jessica did have her third surgery but it was not as we expected for both good and bad reasons:
The GOOD news was that the disease has not progressed since January which we consider an intervention by her grandfathers!
The BAD news is we could have either proceeded with the surgery and risk another stroke like last time-or not proceed and she could suffer a stroke if the disease progresses.
It was an agonizing decision but the three of us decided to proceed with the surgery to put preventive measures in place for the future-we thought Jessica would have wanted that.
The MIRACLE came the day after surgery when she sat up and was walking and talking! She walked out of the hospital and came home 2 days after surgery!
We are so beyond grateful to have her home and recovering--and we are now trying as a family to move forward and get back on our feet emotionally and financially.'
Jess will have another angiogram in three months and given her age, the doctors are hoping and praying with us that the disease has started to arrest and she will not need further surgeries. Please continue to pray for her. My mom prayed to mother Mary throughout this ordeal and has planed a rosebush in her honor. We have no doubt there was help from above!
Thanks to all of you for your prayers and support-attached to this are pictures from Jessica's Make A Wish Trip. She met so many animals-more than she could have ever dreamed. She so deserved it!
She will be checking in on the 8th to have a pic line put in. On the 9th is an angiogram and the 10th will be the surgery on the left front and side of her brain.
This will be Jess's third surgery-the first one went really well and we almost lost her after the second one-we don't know what to expect this time and are terrified-but it's our hope that this will be the last brain surgery she will need for a long time-if not forever.
Please keep us in your prayers-especially Jessica.
In the meanwhile, we are so grateful for being able to take a breath and we are doing all we can to enjoy this time as a family. Even normal everyday family things are a luxury to us-I was able to get a "new" used car and we have spruced up the house--things we did not have time for or emotional/physical energy before this.
The pictures I've attached are from a Bronxnet Program called "Open" Jessica has wanted to speak out about Moya Moya prevention/testing, and thanks to Gabi a family friend, she was able to and was on TV for the first time! She also turns eighteen today! We are looking forward to the first family vacation in quite some time through Make-A-Wish and making lasting and happy memories before we face the hospital yet again in July.
Thank you to all of you--your prayers and support have gotten us to this happy time--please keep us in your prayers and enjoy Father's Day, Fourth of July and the beginning of Summer!
My best friend, Patti, spent 2 years dealing with the consequences of Moya Moya before she was finally diagnosed. Thankfully, 2 surgeries saved her life and she is once again living life and doing well. But it took the support of many in the Pascack Valley to help her through. We will all be praying for your family and for Jessica's full recovery.
I spoke with bill the other day and am wondering if mobilizing people to help in being with Jessica preparing meals or managing tasks may be helpful Dianne Cohen Inwood. This is something synagogues do & one of Inwood's board members used to organize; I would work in Inwood to organize if family wants it best way to reach me would be private message on Facebook. On Facebook I am dianne warshaver