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Help Mila Fight

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My name is Mila, I am 2 months old and I have Cystic Fibrosis. Many have heard of this illness, yet most don't know its meaning. Cystic fibrosis is a hereditary disease that affects the lungs and digestive system. My little body produces thick and sticky mucus that can clog my lungs and obstruct the pancreas. Cystic fibrosis can be life-threatening, and people with this condition tend to have a shorter-than-normal life span. I start my day with a nebulizer and chest compressions, spend my day spitting up and watching my mommy struggle to hold it together while she adds medicine to my bottles, and end my day with a nebulizer and chest compressions. That sounds hard to some, but for me it's all I have known. I see my parents stress when my new medication is over $100, or we barely have enough gas for yet another out of town doctor visit, I see my siblings reaching out for me but being held back because I may catch their colds (getting sick for me looks like having my nebulizer treatments every four hours until the sickness is gone, antibiotics, added medications, and even a hospital stay that can cost a lot with the driving back and forth to the children's hospital that's over an hour away), I see the looks we get when my mom feeds me in public, but most of all I see love. Love when my mom comforts me through enzymes, nebulizers, outfit changes, and chest compressions. I see love when my dad is snuggling me after a long day at work, a job he has to support my mom staying home to take care of me. And I see love when strangers reach out to support my family, so that I can have a better quality of life with the ones I love. Thank you for considering donating to my cause, and I especially appreciate any prayer you can send our way as well. Living with CF is possible, it just takes extra resources...and a lot of extra love.

Organizer

Chelsea Koone
Organizer
Ellenboro, NC

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