Help for Baby Jaia!
JAIA (which is 'victory' in Sanskrit) was born on February 11, 2016 at 1:50 pm, weighing 7lbs. & 6oz. Just like any couple, her parents, Sa'Bria and Joshua, were excited and began planning for her arrival. However, while 5 months pregnant, an ultrasound screening revealed that Sa'Bria was going to be giving birth to a daughter who was going to have a very RARE HEART DEFECT that would cause her to have HALF OF A FUNCTIONING HEART! More specifically, Jaia would be born with HYPOPLASTIC RIGHT HEART SYNDROME (HRHS) w/ TRICUSPID ATRESIA. From that day forward, SaBria and Joshua along with their supportive parents, would carefully plan for Jaia's arrival closely, with many doctors and specialists near by. The plan was that once Jaia was born she would have to undergo a series of 3 surgeries up to the age of 3 to correct her heart anatomy and function.
At 1 week old, SaBria and Joshua were also informed that Jaia's coronary arteries were underdeveloped and therefore dependent on her right ventricle which was non-functioning. Therefore, Jaia was in need of a heart transplant as soon as possible because her heart would slowly deteriorate and cause Jaia to eventually have a heart attack sometime in her life. After being placed on the transplant list on March 2, 2016, she received a transplant in as little as 2 days!
Jaia has had successful heart biopsies and cardiology follow-up visits once a month, every month since then. Jaia has had a good track record over the past year. On March 22, 2017, Jaia, and her parents headed to Jaia's regular heart biopsy appt. Upon arriving the doctors checked vitals and Jaia's temperature came back 101.4 F. This was an immediate reason to cancel her biopsy and her doctors ordered a chest x-ray as a precaution. The x-ray showed that Jaia had a RHINOVIRUS INFECTION and PNEUMONIA of her left lung. Jaia was immediately admitted to the hospital.
Since then Jaia has been a Pediatric Intensive Care Unit patient at New York Presbyterian where the doctors are fervently treating her pneumonia and transplant; her discharge is indefinite as of now. SaBria and Joshua live on ONE INCOME because SaBria cares for their two children, Jaia and two and a half year old, Josiah at home. Joshua does plumbing and HVAC but because SaBria is needed by Jaia's side at the hospital, Joshua needs to care for Josiah @ home.
It's an unforeseen uphill battle and this young family can use ALL YOUR help to stabilize themselves during this very trying time. Your help by contributing WHATEVER you can for Baby Jaia and her parents, would be GREATLY appreciated in EVERY WAY!
THANK YOU ALL IN ADVANCE!