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Help Averia & Lennah Come Home

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Our Identical Twin Granddaughters were born on 6/20/18 @ 33 weeks- They have been diagnosed with an ultra rare genetic disorder Osteogenesis Imperfecta, better known as Brittle Bone Disease- There are at least 8 known types and no known cure. Doctors have ruled out types 1 (the least debilitating), and 2 (fatal at birth)- We are waiting for the results to know which type but what is known is they will need life long care- at this point we are working towards a specially equipped vehicle so when the girls can come home we can get them to and from their doctors appointments- we started with a goal of $15,000.00 but our beautiful granddaughters have an uphill fight that will literally never end. It’s just like having bones made of glass and they will need life long care, so please share on Facebook, retweet on Twitter, and help get the campaign for my girls out to the world. Any help will be greatly appreciated-

Organizer

LeeandJamie Newberry
Organizer
Milan, IL

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