my beautiful daughter,Victoria was born on January 14, 2016. She was diagnosed with hydrocephalus when my wife was 20 weeks pregnant We were told (incorrectly) that she would probably not survive birth. She did!! She was born at 38 weeks and spent one week in NICU and one month on oxygen. She also since then has been diagnosed with CVI, high myopia, lobar holoprosencephaly, and absent septum pellucidum.
She recently underwent brain surgery on September 26, 2016 (endoscopic third ventriculostomy surgery that ended up failing and we had to rush her 3.5 hour back to the Cincinnati Children’s hospital and found out that her brain had shrunk and hemorrhaged so they did surgery and inserted a drain. On October 10, 2016 she underwent her third surgery in 3 weeks, putting in a VP shunt. A week later she is back in the hospital with a fever, low red blood count, weakness, paleness, and infection. They put her on fluids, gave her a blood transfusion, and adjusted her shunt valve.
She is STRONG and she is fighting so hard! I know she will get better!
- Kaitlin McDevitt
- Mary & John Lafferty
- Debbie Lynch
- Lisa Downey Bennett
- Elaine Willis
Saint Albans, WV