Please help me save my niece!
Donation protected
Please help me save my niece!
Hello to anyone who's reading this,
I'm a German university student who wants to save her niece from a cruel fate.
My niece Milana was diagnosed with muscle atrophy SMA2. For everyone who doesn't know what it is: Spinal muscular atrophy type 2 (SMA2) is a genetic neuromuscular disorder that affects the nerve cells that control voluntary muscles (motor neurons). Without treatment, progressive muscle weakness develops in babies with SMA2 between ages 6 and 12 months. Babies with SMA2 can sit without support, however, they cannot stand or walk independently. Feeding and breathing problems also develop.
->Source: https://rarediseases.info.nih.gov/diseases/4945/spinal-muscular-atrophy-type-2#ref_13082
Most infants die due to not getting the proper treatment and medicine they need since it's very expensive! I don't want my niece to share the same fate..
Her birthday was on the 29th of August, she turned one year old. She's just a little baby who is in dire need of getting the proper treatment! My relatives in Russia cannot pay for the therapy and the medicine she needs as fast as possible! I can't stand by and watch her die slowly and painfully, which is why I open up this gofundme, hoping to get enough money to save her life..
***UPDATE 1***
Novartis, a pharmaceutical company would be able to provide Zolgensma,the medication which Milana desperately needs! The medication costs 2.125 Mio$ plus it needs to be safely transported from the United States to Russia. We don't have much time left...Milana is unable to crawl or even properly move anymore...She started to show troubles while breathing..My relatives have to get the money together until July of 2020...Please every share and donation counts to save her life!
***UPDATE 2***
Thanks to everyone who supported us and keeps doing so!
Thanks to all of the kind people out there we managed to gather 1.5 Million Euro (this gofundme page plus another donation pool situated in Russia and Kazakhstan)! We're so grateful to every little help we can get! To be able to buy the medicine Milana needs we still have to gather 500.000 Euro until the end of July! Please keep sharing this gofundme because there's not much time left to save this little girls life!..
Share this with your friends, family and on social media! The more people see it, the more likely are the chances to find some help or get enough money!
I'm grateful to any euro or dollar that will be donated..
All donations will be spend to get Milana her medicine and therapy!
Hello to anyone who's reading this,
I'm a German university student who wants to save her niece from a cruel fate.
My niece Milana was diagnosed with muscle atrophy SMA2. For everyone who doesn't know what it is: Spinal muscular atrophy type 2 (SMA2) is a genetic neuromuscular disorder that affects the nerve cells that control voluntary muscles (motor neurons). Without treatment, progressive muscle weakness develops in babies with SMA2 between ages 6 and 12 months. Babies with SMA2 can sit without support, however, they cannot stand or walk independently. Feeding and breathing problems also develop.
->Source: https://rarediseases.info.nih.gov/diseases/4945/spinal-muscular-atrophy-type-2#ref_13082
Most infants die due to not getting the proper treatment and medicine they need since it's very expensive! I don't want my niece to share the same fate..
Her birthday was on the 29th of August, she turned one year old. She's just a little baby who is in dire need of getting the proper treatment! My relatives in Russia cannot pay for the therapy and the medicine she needs as fast as possible! I can't stand by and watch her die slowly and painfully, which is why I open up this gofundme, hoping to get enough money to save her life..
***UPDATE 1***
Novartis, a pharmaceutical company would be able to provide Zolgensma,the medication which Milana desperately needs! The medication costs 2.125 Mio$ plus it needs to be safely transported from the United States to Russia. We don't have much time left...Milana is unable to crawl or even properly move anymore...She started to show troubles while breathing..My relatives have to get the money together until July of 2020...Please every share and donation counts to save her life!
***UPDATE 2***
Thanks to everyone who supported us and keeps doing so!
Thanks to all of the kind people out there we managed to gather 1.5 Million Euro (this gofundme page plus another donation pool situated in Russia and Kazakhstan)! We're so grateful to every little help we can get! To be able to buy the medicine Milana needs we still have to gather 500.000 Euro until the end of July! Please keep sharing this gofundme because there's not much time left to save this little girls life!..
Share this with your friends, family and on social media! The more people see it, the more likely are the chances to find some help or get enough money!
I'm grateful to any euro or dollar that will be donated..
All donations will be spend to get Milana her medicine and therapy!
Organizer and beneficiary
Katrin Pflug
Organizer
Halle (Saale
Danil Pomorcev
Beneficiary
