Thomas' Duchenne Muscular Dystrophy Journey.
Spende geschützt
Thomas is our Rainbow baby (a baby born after a miscarriage). We are absolutely devastated that in January 2019 Thomas just aged 3 1/2 years old was diagnosed with Duchenne Muscular Dystrophy (DMD).
DMD is a rare genetic condition which results in the body's muscles too waste over time. this means Thomas's body does not produce a protein called dystrophin which is needed for the muscles to function correctly. A child like Thomas only has a life expectancy of around 30 years.
Thomas's quality of life will be severely affected and with time he will need to use a wheelchair full time due to his muscles in his body stopping working. Eventually this will effect all of Thomas's muscles including the heart.
There are currently no cures or treatment options available for Thomas and others with the same condition.
Our aim is to raise funds for equipment for Thomas to supplement the limited budget provided by the government and local services. As Thomas gets older he will rely heavily on mobility devices both in and out of the home. Thomas will need many adaptions to the house which include his own accessible bedroom and wet room which includes hoists. He will need every room in the house to be altered so he can access them with his manual and electric wheelchair, this will enable him to still join in with many family memories to come.
As a family we want Thomas to have the best life possible and this is were we need your help to fundraise so this can be possible for such a happy bubbly boy to succeed with his short life.
Many Thanks
Thomas and Family
xxx
DMD is a rare genetic condition which results in the body's muscles too waste over time. this means Thomas's body does not produce a protein called dystrophin which is needed for the muscles to function correctly. A child like Thomas only has a life expectancy of around 30 years.
Thomas's quality of life will be severely affected and with time he will need to use a wheelchair full time due to his muscles in his body stopping working. Eventually this will effect all of Thomas's muscles including the heart.
There are currently no cures or treatment options available for Thomas and others with the same condition.
Our aim is to raise funds for equipment for Thomas to supplement the limited budget provided by the government and local services. As Thomas gets older he will rely heavily on mobility devices both in and out of the home. Thomas will need many adaptions to the house which include his own accessible bedroom and wet room which includes hoists. He will need every room in the house to be altered so he can access them with his manual and electric wheelchair, this will enable him to still join in with many family memories to come.
As a family we want Thomas to have the best life possible and this is were we need your help to fundraise so this can be possible for such a happy bubbly boy to succeed with his short life.
Many Thanks
Thomas and Family
xxx
Organisator und Spendenbegünstigter
Elizabeth Maiden
Organisator
England
Jean Henderson
Spendenbegünstigte