Supporting Our Family Through a Rare Disease

Hi, my name is Emily, and I’m the proud mom of our brave and beautiful little 3 year old girl named Kylie. In January of this year, Kylie was diagnosed with a rare genetic disorder called Glycogen Storage Disease (GSD). This disease affects her liver and muscles, and her body’s ability to regulate blood sugar.

Kylie has been in and out of the hospital since January. Due to multiple hypoglycaemic episodes, Kylie required a G-Tube to be placed to provide her with a specialized formula to keep her blood sugar stable and treatment for hypoglycaemia.

She requires around-the-clock care, strict feeding schedules, and special medical routines—day and night—to keep her safe and healthy.

Because Kylie’s disease is so rare and serious, I am currently at home with her full-time to care for her. This means our family is living on a reduced income (with my husband J.R. working overtime most days) while juggling ongoing medical expenses, special dietary needs, and the day-to-day costs of raising a child with a chronic illness.

We are reaching out with open hearts to ask for your support. Your kindness will help us cover:

• Medical costs not covered by insurance

• Specialized foods and supplies Kylie needs

• Everyday living expenses so I can continue providing the 24/7 care she requires

Every donation, no matter the size, makes a meaningful difference in our lives. If you can’t donate, we deeply appreciate you sharing Kylie’s story to bring more awareness to Glycogen Storage Disease.

Kylie is our little warrior, and with your help, we can keep her safe, happy, and thriving. Thank you for being part of her journey.

With gratitude,

Emily, J.R., and Kylie