Support Olivia in her fight against SMA

Olivia Brooke Pokorny was born a healthy baby girl.  At just two months old she was suddenly diagnosed with Spinal Muscular Atrophy Type 1, a rare, progressive genetic disorder that occurs in about 1 in 10000 babies each year.  SMA is caused by a missing gene that is supposed to create the cells responsible for communicating with the body's muscles and telling them to work properly.  Thankfully, Olivia was able to receive treatment on September 9, but she still has a long road ahead of her.  Currently, she is experiencing breathing issues, has extremely low muscle tone, and is being fed through an NG tube.  She is also using oxygen, breathing treatments, suction, and a cough assist machine to keep her as strong and healthy as she can be.  Time will tell how much the treatment will resolve. While we remain hopeful and will continue praying for her... the financial burden accompanying her disease is huge.  Her mom, who has just exhausted her paid time off during her maternity leave, is out of work until further notice to be able to care for her and bring her to regular appointments with neurology, pulmonology, gastroenterology, speech, physical therapy, and occupational therapy.  While she hopes to return to work soon, she will have to continue to miss days to attend all of her weekly appointments.  We are hoping to raise funds in order to lessen the financial stresses on her family with the many new expenses that come along with her illness so they are more able to focus their time and energy on helping her to heal and grow. Every little bit is so very much appreciated.  Thank you and please keep her in your prayers!