So before they turned 18 we started the guardianship process. Which you cannot do on your own. You HAVE to get a lawyer. Again, it’s not enough you’ve raised these children their whole life you now need an attorney to file the paperwork for you and tell the court that you need to obtain guardianship. And it is not cheap. And did you know that the attorney only represents you as the guardian…..you have to also obtain an attorney ad litem to represent the children and their best interests. So not only do we have to pay for our attorney we now have to pay for their attorney. Granted, the fee isn’t nearly what the other one is but it’s money we don’t have. This is what special needs parents face….years and years of sleepless nights……dealing with one after another of government agencies to get your kids the support they need……never knowing if a simple cold will turn in to pneumonia and ultimately kill your child…….the endless doctors appointments and therapies……..a garage filled with medical supplies and never knowing if Medicaid will suddenly decide not to provide them anymore…….person after person in your house day after day and never having an ounce of privacy…….All of this culminates in to that moment that your child turns 18 and you suddenly have to “ask permission” to continue to care for them and fight for them. And if that wasn’t enough, you have to empty your bank account or get a loan just to even do it, when all we want to do is to continue caring for our children……our sweet girls who cannot care for or defend themselves.
So we wait…..we wait for our court date to hear the final answer and we do it completely broke with no other resources to pull from……..that is our reality.
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