Dear Friends, Help Save Our Baby’s Life – Urgent SMA Treatment Needed

My 11-month-old nephew, "Satya Ved Jonnada," from Hyderabad, India, has been diagnosed with Spinal Muscular Atrophy (SMA) Type 2, a rare and life-threatening genetic disorder that affects muscle strength and movement. Without urgent treatment, SMA can lead to severe disability or even be fatal.

There is hope — Zolgensma, a one-time gene therapy approved by the FDA, can replace the missing SMN1 gene and stop the progression of this cruel disease. But the treatment comes at an overwhelming cost of $1 million USD (9Cr INR) for Gene Therapy and must be administered before our baby turns two.

We are racing against time to raise the funds. We are currently working towards providing an intermediate medication, Risdiplam (Evrysdi), costing around $4,000 USD every 20 days until this gene therapy is provided.

Every dollar counts in giving our child a chance at life.

Please help us by donating or sharing our story. Your support means the world to us.

#SaveOurBaby #SMAAwareness #Zolgensma #SMA