Emma Sorensen's journey began back in August, 2018 when a stroke-like incident occurred out of nowhere and landed her an ambulance ride to the ER. After being released from Broward Health North with no real diagnosis, she was sent for further testing to find she had what they thought at Nicklaus Children's Center was a low-grade Glioma.
Fast forward a few months later, multiple doctors and different hospitals opinions, and multiple scans later, all confirming a low-grade Glioma, we were put on watch and see protocol common for a low grade Glioma. After being carefully watched by her neurosurgeon at Joe DiMaggio Children's Hospital, we saw the tumor growing and changing. Because if this he and we determined the tumor needed to come out. However, no one expected the pathology we were about to receive. On May 29, 2019 (9 short months after this all began) a bilateral frontal craniotomy was performed where Emma's outstanding surgeon was able to do a complete resection and get all (that was apparent to the human eye) of the larger tumor that was now there. We were so happy with the outcome of the surgery to see our beautiful angel resting so peacefully and tumor free!
Waiting for the preliminary pathology was easy as we thought we had beaten this low-grade, benign Glioma. You can imagine our surprise 4 days later when we received the news that the preliminary pathology came back and we were dealing with an entirely different animal- a high-grade malignant Glioma. Then finally, on June 11th, we were told that the final pathology would label this a Glioblastoma Multiforme (https://www.abta.org/tumor_types/glioblastoma-gbm/).
Currently the treatment plan for our beautiful Emma to beat this terrible disease consists of 6-7 weeks of chemo radiation 5 days a week followed by 10 months of oral chemotherapy.
Please help in any way you can to offset the medical bills that her parents Kelley and Michael Sorensen will incur during this process.
#Emmastrong #cancersucks #onedayatatime