
Please Help Hayley Fight Lyme Disease
My incredible niece, Hayley Ogas, has been battling symptoms related to Chronic Lyme disease for nearly 5 years, but was officially diagnosed within the last year after a multitude of symptoms baffled doctors. Part of the reason Lyme Disease is so difficult to diagnose and treat, especially in advanced stages, is that it impacts every system of the body.
In 2016, Hayley started to feel ill. She was rushed to urgent care with an elevated heart rate and lightheadedness. She was immediately referred to a cardiologist who determined Hayley had tachycardia. In addition, she was referred to a Pulmonologist and a Rheumatologist. After months of countless tests, hospitalizations, monitoring, prescriptions of heart and blood pressure medications , she was diagnosed with POTS syndrome.
She continued treatments and monitoring with a POTS doctor in Los Angeles. Her symptoms continued to worsen over the next 3 years. It was at this point that she was referred to an infectious disease specialist who conducted extensive tests and determined that Hayley not only had Lyme Disease, but, Babesia (a parasitic disease related to malaria), Bartonella disease, and her body was riddled with high toxicity molds.
At this stage, Hayley was unable to walk or shower on her own. Her mother (my sister), Kim, became a full time caregiver. She had no choice, but to leave her job to take care of Hayley.
The only positive with the diagnoses, were they now knew what to treat. They just had to find the treatment that Hayley would respond to. Hayley had surgery a few months ago to fit her with a power port (not covered by insurance). She is now on multiple antibiotics, daily IV’s which Kim administers, and weekly doctor visits for advanced treatments.
There was a time when Hayley had a bright future as an actress, was very social, and loved to travel. Unfortunately, she had to turn down numerous acting auditions, was no longer able to travel, and was housebound due to her advanced Lyme. Hayley has been undergoing numerous advanced treatments , some with multiple complications and allergic reactions. It has been 8 months that Kim has been out of work, being the sole caregiver for her daughter. Lots of ups and downs, but they continue to hope that one of the treatments will work and she will start to show improvement and be on the road to remission from this debilitating disease.
Unfortunately, most of these treatments are expensive and not covered by insurance. They would greatly appreciate any assistance, no matter how small, so that they can continue with Hayley’s treatments.
Anything helps as we try to get Hayley better. Thank you for your support and healing thoughts for Hayley’s recovery.
Please pass this along to anyone who might be willing or able to help. Thank you.