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Pink4Piper Christmas Lights 2022

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Pink 4 Piper - Support 4 Families In July 2021 we received the news that no family should ever have to hear - our darling 4 year old daughter Piper was diagnosed with DIPG (Diffuse Intrinsic Pontine Glioma), an incurable and untreatable brain tumour. This was devastating to our family - Mum Janelle, Dad Chris and Piper's brothers, Alex (10) and Lachlan (6) - as were were told Piper would only live for 6-9 months from diagnosis. Piper underwent the only standard palliative treatment for DIPG, being daily radiation therapy over 6 weeks. We moved our family from our home in Newcastle to Sydney for that time and supported Piper through the treatment. Piper responded very well to radiation and the tumour shrunk significantly, doctors were confident, she would live longer than her original prognosis. Unfortunately, this was not the case and Piper passed away in February this year aged 5, just 7 months after being diagnosed. We are so thankful for the overwhelming community support after Piper's diagnosis. Emotional, in-kind and financial support allowed our family to make many memories with Piper, including a trip to Melbourne and a Gold Coast holiday to swim with the dolphins. The emotional and financial impacts of the trauma on our family are beyond comprehension for us and we have had many friends, family and community members offer continued support and for that we are so very thankful. Sadly, 20 children each year are diagnosed with DIPG in Australia and while there are many great medical professionals working to find a cure or at least, some effect treatment, DIPG remains terminal. In Piper's name we will raise funds to support those families who have been, are currently and who will be devasted by DIPG until a cure is found.

Organizer

Janelle Kelly
Organizer
Cameron Park NSW

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