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Help Johnna Break Free From Mold!

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On behalf of the community of friends who know and love Johnna Sullivan, we are asking for assistance to help her cover the medical costs of treatment for her severe mold illness, further complicated by a misdiagnosis of Cystic Fibrosis. None of her life-changing treatments are covered by insurance, which include weekly shots, IVs, supplements, and a diet of entirely organic (note: expensive) food starting immediately. Johnna is a single, working mom and any donation no matter how small would be deeply appreciated! 

This is her story. 

"They say that timing is everything, and it really must be true. I lived a perfectly healthy life before college. I had the occasional allergies and asthma with exercise, but very limited. During my sophomore year of college in 2006 I lived off-campus in Stuebenville, Ohio, in a house that changed everything.

In this house, my lungs stopped working. I became allergic to alcohol and coffee, and most fruits. In Ohio, they gave me steroids. Prednisone to be exact. I continued on steroids throughout college. In 2007 an infectious disease doctor told me I had Cystic Fibrosis, but that it shouldn’t affect my life in any way. Yet.

A year later I moved to Haiti and stayed for 5 years, returning home on and off to treat cysts, severe infections like MRSA, have sinus surgery, etc. I stayed on Prednisone 80% of the time in Haiti.


In 2012 I came home to give birth to my son. Doctors made me high risk, and told me I most likely wouldn’t carry past 32-35 weeks. I made it to 40 +1 weeks, but was on the highest dose of Prednisone to date.


I then entered a CF clinic in 2013, telling multiple doctors that all of my issues began in a moldy house in Ohio. Some nodded, some laughed at me, some ignored me. I began up to 6 hours a day of treatment for CF, using a special vest to break up the mucous in my lungs with medications before, during, and after. After 3 months of this and no improvement, doctors didn’t know where to guide me other than back to steroids.


For the next two years I simply just stayed on Prednisone. I was re-tested for Cystic Fibrosis by Yale and told yes I have it, but my results were now “inconclusive.”

Finally, in June of 2016, with urgings from the Holy Spirit to abandon my steroids and not look back, I did. During this month I was checked weekly to make sure my oxygen levels didn’t drop too low. I contacted 7 different doctors, none of them would take me. My friend Emily prayed over me, and we both agreed my body was different. I had 57% lung function at this point. That’s when she found me my doctor. (note: three hours of searching on Google and lots of prayers)

On my son’s 3rd birthday, I received the call from Dr. Daniel Cagua-Koo, MD and Mold Specialist. He spoke my symptoms back to me: extreme fatigue, limited lung function, cramping in hands and feet so bad you can’t walk, mood swings, poor memory and focus, and so much more. I told him I had been on steroids for 8 years, and he almost gasped. I’ve been shutting down my body every single day. 

That same day, my parents results came back 100% negative for carrying the CF gene. If they don’t carry it, it’s impossible I have it.


So, now I am in treatment for Mold Poisoning, a condition that goes misdiagnosed 40% of the time. I will need weekly IVs of magnesium, Vitamin K and C. I’ll need injections to help my body rid itself of the toxins in me. But most importantly, I’ll need to work towards fixing the damage the steroids have done, especially to my immune system, making my body a garden for mold. I have Candida (a severe overgrowth of bad yeast that has entered my blood), a liver infection, leaky gut, a parasite, low cholesterol, and inflammation in my lungs especially.

My treatment center is 2.5 hours away, which I need to attend weekly. There is hope that my lungs return to normal within a year’s time. I’ve begun the path to ridding the Candida in my body. There is so much to be done. But all is well that ends well, yes?

Although I am still a foggy brained barely breathing moldy human, I am ok with it. I have not felt right for so long, and now I am finally on the path to healing. God is good."




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    Organisator und Spendenbegünstigter

    Emily Dunphy
    Organisator
    Guilford, CT
    Johnna Sullivan
    Spendenbegünstigte

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