My 8year old nephew has been diagnosed with NF1 since November 2015.
NF1 is a genetic condition called Neurofibromatosis which affects 1 in every 2,500 people. NF causes tumours to grow anywhere in or on the body. Every day a baby in the UK is born with the condition, making it more prevalent than cystic fibrosis, Duchenne muscular dystrophy and Huntington's Disease combined. There is no cure. Many of those with NF can have multiple medical, physical and psychological complications including tumours, learning difficulties and speech problems.
I would like to do my bit to raise awareness. On October 7thI will be running the Bangor Half Marathon 2017 in aid of The Neuro Foundation and would be grateful if you could donate in any way possible. Please take a second to look at the information leaflet to learn more about NF1. http://www.nfauk.org/assets/downloads/NF_leaflet_May_2013.pdf
Please have a read