meet. Looking at her you may think that
she is a typical "tween" but a few things make her extra special. She was born with a birth defect called
Gastroschisis causing her to have multiple surgeries before at
the age of 7 months her family was told that she would need a Small Bowel/Liver
Transplant. After being on the
Transplant list for 7 months she received her organs on Feb 3, 2002. Since then she has grown up living with a
feeding tube, dietary restrictions, multiple hospital stays, surgeries and
physical limitations but that hasn't stopped Navaiah from trying to live a somewhat "normal" life.
In January 2011 her
health took a big turn when she had emergency surgery due to a bowel
obstruction which caused her to lose a good amount of her transplanted
organ. Along with this set back and a
severe rejection in 2004, Navaiah has spent most of the past 3 years in and out
of the hospital in both CT and DC with hardly anytime home with her family.
She was re listed a year ago for a second small bowel transplant with her team at Georgetown University in Washington, DC over a year ago and just received her second chance at life on December 5th! There is still a long road ahead of her with recovery and this will cause a huge financial strain on her family as Mom (Kailani) will be out of work for an undetermined amount of time and there will be a lot of traveling back and fourth between CT and DC along with many other medical related expenses.