As many of you know, on Sunday, May 12, 2019, Chloe Louise Dippel entered our crazy world at 1:18 p.m., weighing 7 lbs. 10 oz. and measuring 20” long. This was truly one of the happiest days of Sarah’s life. As she held her beautiful baby girl, she could not have possibly imagined the devastating news her family would receive.
A week after baby Chloe was born, Sarah, Alex and the boys were beginning to settle into their new normal as a family of five when Sarah received a call that Chloe’s newborn screening results had shown she may have a rare genetic disease called MPS-1 or Hurlers Syndrome.
On Thursday, July 18, the morning Sarah was scheduled to start back behind the chair after maternity leave, Sarah and Alex received the news they prayed would not be true. After further testing, doctors confirmed Chloe has MPS-1 - a rare genetic disorder in which the body is missing or does not have enough enzymes needed to break down long chains of sugar molecules. The sugars then build and start to destroy and attack every part of the body.
Chloe has been diagnosed with the most severe form of MPS-1. There is no cure – doctors can only slow down the process. The first step is for Chloe to have a bone marrow transplant and thankfully, the family has already found a donor. However, before she can undergo the transplant, Chloe must endure several weeks of chemotherapy treatments to break down and destroy her immune system so that her precious little body will accept the new bone marrow.
Chloe is scheduled to be admitted to Children’s Mercy on Thursday, August 8. During this time, Sarah will not be working so that she can be by her daughter’s side.
*Many have reached out in heart felt efforts to support Sarah & her family through this unforeseen journey ahead. This GoFundMe has been created for this purpose.
*Any cards, gifts ect. can be mailed or brought to: SALON on BARRY C/O Sarah Dippel 218 NE Barry Rd Kansas City Mo 64155