Living While In The NICU

At 16 weeks, we found out we were expecting mono-di twins(monochorionic-diamniotic). At 19 weeks, we were told that they were developing twin to twin transfusion syndrome (ttts). The donor twin, Nikolai, had very little fluid, and was also experiencing IUGR. We had them on 6/4/2017 and they were 28 weeks at that point. A week later Nikolai was diagnosed with late onset Strep B that turned into meningitis and phenomia. He was put on the HFOV (High Frequency Oscilator Vent) and has steadily gotten worse. They have him on the highest settings and high oxygen requirement has been consitantly 70% and above. We live over an hour and a half away from the hospital and have been staying there with him and his brother Damion. Damion will likley be released around the his origanal due date but do to all the complications Nikolai will have to stay atleast a few more months, and even when he is able to come home will have some sort of oxygen requirement. We appreciate any help provided, and all fund will go to the bills that have been piling up while we haven't been home. Thank you all for the love and support you have given us throughout this whole ordeal, we hope to be able to bring the boys home sooner rather then later.