- J
- S
- P
Hi, all. Many of you already know our story, but for those who don't, here's what's been going on. Kevin, my partner of four years, new husband (we eloped at burning man!!) and loving dad/step-dad to his two boys and my two girls, developed some worrisome neurological symptoms about six months ago. They have been progressively getting worse, and after a flurry of doctor's appointments and tests, we learned that he has a rare, devastating neurodegenerative condition with a very poor prognosis. To say that we are overwhelmed would be an understatement, and we are trying to figure out how to plan for and navigate through a very uncertain future together. One of Kevin's doctors has strongly recommended a course of stem cell therapy as a possible means to slow the progression of this illness. The research is promising and we are incredibly optimistic that this may help, but it is very expensive.
Hence, our vulnerable ask. These past few months have been surreal and I can hardly believe that I'm typing these words but we need some help. We are looking at significant medical costs over the coming years and are already working hard to provide for our blended family of four kids as best we can. The cost of this stem cell therapy is too much for us to bear on our own, but the sooner Kevin tries it, the better the potential outcome. We hope that this treatment enables him to stave off the serious disability and early death that this condition causes for as long as possible.
At this point, our priorities have become painfully clear in what we want out of the time we have together - we want to be able to watch our kids grow up, and for Kevin to continue to be the active and engaged dad his kids need. Kevin wants to stay healthy enough to continue working for as long as possible, in his area of expertise which he genuinely enjoys. We want to be able to have quality family time together, love one another, and make the most out the time we have left. And we deeply believe that stem cell therapy is our best possible chance at achieving these goals.
We are looking for any help that folks may be willing to provide, but have zero expectations and completely understand if you can't donate. Even just reposting would be tremendously helpful.
Thank you, from the bottom of our hearts <3
Kevin & Monica

