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Join Remmy's Fight

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Remmy Maxwell was born on April 7th at 4lbs, 2oz at just 37.4 weeks. Remmy's fight began at birth as he struggled with gaining weight and endured prolonged hospital stays to determine the cause. Remmy has now struggled with maintaining normal levels of blood sugars and has been diagnosed with neonatal diabetes. He will need insulin therapy and monitoring for life. Genetic testing revealed Remmy has a HFNB1 gene related disorder that is multifaceted as it affects protein transcription throughout the body. Remmy has now been diagnosed with neonatal diabetes, hypothyroidism, malabsorption and cystic kidney disease. He will now need continuous monitoring, lab draws, ongoing doctors appointments, procedures, medications and specialty follow ups, as well as potential hospital stays. As his mother Eva will be required to take time off of her job to be there for Remmy and her four other sweet boys at home. Numerous costs have already added up after Remmy has endured three long hospital stays in his short 9 weeks here on earth. Being a single mom, with a newborn at home and in and out of the hospital, and four other boys at home is an unimaginable task. Please help surround this single mama and her boys with love and support during this difficult time.
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    Organizer and beneficiary

    Ashley Deak
    Organizer
    Wake Forest, NC
    Eva Warren
    Beneficiary

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