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Please help us so we continue be with our son

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Hello everyone, 
myself & Chelsea are very reluctant to do this go fund me page as we are proud independent people. If you know me you know how hard creating this page is for me. However I am going to swallow my pride & think about what’s best for my little family. 
 
Deacon Daines born emergency c section at 26 + 3 weeks pregnant weighing 1lb 9oz after my partner Chelsea’s waters broke at 20 + 3 weeks.
Deacon was born very poorly & was transferred to Hull hospital straight after birth.
Deacon has suffered two bleeds on the brain, punctured lung, numerous infections including sepsis & has been diagnosed with chronic lung disease.
Travelling to Hull from Doncaster everyday to see our son was a struggle emotionally, physically and financially. 
 Deacon has since been transferred to Scunthorpe hospital as it’s a little closer for us to travel everyday. 
Deacon was making fantastic progress but has took a U turn and deteriorated rapidly, going blue and floppy in his mothers arms twice and now needs specialist care in a hospital further away.
 
My partner is on maternity & I was forced to be off work sick since her waters broke 4 months ago. 
My partner was on bedrest up until giving birth, due to the great risk of giving birth or loosing our son due to infections. 
The chances of our son surviving was slim if she gave birth between 20 weeks - 25 weeks. 

 I am now on half pay and shortly no pay due to needing to be with my son and partner at this difficult time.  unfortunately we can’t access public funds due to not claiming any benefits, I find thisWe have tried numerous charity’s & government but they cannot help as we are still in employment. 
we now as a last resort look to our friends, family and followers of deacons journey for help.
This is a picture of Deacon before the U turn, we was able to dress him, feed him sometimes and cuddle him. Since the unfortunate turn of events we are unable to cuddle him, dress him & he’s got breathing head gear on which helps him breath. We hope to one day get back to this level of health but he needs time & specialist doctors.
 
 
 

Fundraising team (2)

Ryan Daines
Organizer
England
Chelsea Soffe
Team member

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