Help Oliver to walk
Donation protected
Oliver was born in February 2019, 10 weeks early on the recommendation of obstetric doctors due to reduced variability in his heart rate. Oliver spent the first 16 weeks of his life between NICU’s and paediatric units and had 2 operations during that time.
Whilst in NICU, Oliver suffered a bleed on his brain and was diagnosed with a genetic abnormality, DYRK1A syndrome. He has a duplication and a deletion on part of chromosome 21. Oliver was also diagnosed with bilateral anterior segment Dysgenisis - a severe eye condition in both eyes. Oliver’s eyes did not develop normally during the pregnancy, the result being he has smaller than usual eyes and his corneas are cloudy rather than clear. Oliver is registered blind.
Since discharge from NICU Oliver has undergone a further 7 operations and has endured further long stays at various PICU’s. Oliver is completely Peg-Fed and has serve oral aversions. He is also yet to crawl or walk but does sit for periods unaided. Oliver has been subsequently diagnosed with Microcephaly and Global Development Delay.
Oliver has already overcome many challenges that at first, were thought to be too great for him. His next challenge is to learn to crawl and/walk even if that’s with some form of assistance.
Oliver has physiotherapy sessions approximately once every 6 weeks as provided by the NHS. However, we do not consider that those sessions alone meet his needs and will enable him to fulfil his potential. We have been told that Oliver does have the potential to walk. We therefore wish to raise some money to help contribute to a regular course of private intensive physiotherapy sessions which will be specifically focused and tailored to Oliver’s ability and needs. We are very very grateful for everybody’s kind words and generosity so far and are completely overwhelmed by everybody’s spirt and willingness to help particularly in light of the current difficulties everybody is facing.
Oliver is our hero and we know he has touched the hearts of lots of other people too. He is the strongest, bravest and most beautiful boy. He is funny and often laughs spontaneously at unusual noises. Oliver can clap his hands and shout in his own language at his mum, dad and sister. We truly believe that in time, and with the help of intensive physiotherapy, Oliver will learn to walk and navigate. We just have to give him all of the tools available in order for him to get there. We owe it to him.
We are already the proudest parents in the world, but know deep down that our little boy can learn do these new things and make us even prouder, and hopefully make lots of other people who care for him just as proud.
Thank you to everybody who has taken the time to read this story and thank you again for your generosity.
Love, Dan, Nicole, Oliver and Nancy.
Whilst in NICU, Oliver suffered a bleed on his brain and was diagnosed with a genetic abnormality, DYRK1A syndrome. He has a duplication and a deletion on part of chromosome 21. Oliver was also diagnosed with bilateral anterior segment Dysgenisis - a severe eye condition in both eyes. Oliver’s eyes did not develop normally during the pregnancy, the result being he has smaller than usual eyes and his corneas are cloudy rather than clear. Oliver is registered blind.
Since discharge from NICU Oliver has undergone a further 7 operations and has endured further long stays at various PICU’s. Oliver is completely Peg-Fed and has serve oral aversions. He is also yet to crawl or walk but does sit for periods unaided. Oliver has been subsequently diagnosed with Microcephaly and Global Development Delay.
Oliver has already overcome many challenges that at first, were thought to be too great for him. His next challenge is to learn to crawl and/walk even if that’s with some form of assistance.
Oliver has physiotherapy sessions approximately once every 6 weeks as provided by the NHS. However, we do not consider that those sessions alone meet his needs and will enable him to fulfil his potential. We have been told that Oliver does have the potential to walk. We therefore wish to raise some money to help contribute to a regular course of private intensive physiotherapy sessions which will be specifically focused and tailored to Oliver’s ability and needs. We are very very grateful for everybody’s kind words and generosity so far and are completely overwhelmed by everybody’s spirt and willingness to help particularly in light of the current difficulties everybody is facing.
Oliver is our hero and we know he has touched the hearts of lots of other people too. He is the strongest, bravest and most beautiful boy. He is funny and often laughs spontaneously at unusual noises. Oliver can clap his hands and shout in his own language at his mum, dad and sister. We truly believe that in time, and with the help of intensive physiotherapy, Oliver will learn to walk and navigate. We just have to give him all of the tools available in order for him to get there. We owe it to him.
We are already the proudest parents in the world, but know deep down that our little boy can learn do these new things and make us even prouder, and hopefully make lots of other people who care for him just as proud.
Thank you to everybody who has taken the time to read this story and thank you again for your generosity.
Love, Dan, Nicole, Oliver and Nancy.
Organizer
Nicole Cruse
Organizer
