Help Hania fight SMA1
Donation protected
Hania was born in my hometown in Poland in October 2019. Her parents were really happy to start a new chapter in their lives. Their joy didn’t last very long.
When Hania was just 1 month old her parents learned that there was something wrong with their daughter. That little girl was being very lethargic, unable to lift her head up and stopped moving her arms and legs.
After many visits in hospital, endless doctors consultations Hania was diagnosed with a spinal muscular athropy type1 (SMA1). That news was incredibly shocking to family and friends.
SMA is a genetic disease that gradually paralyzes babies. Babies with SMA type 1 are often described as “floppy” babies, due to their low muscle tone (hypotonia) and severe muscle weakness. Muscle weakness affects movement, swallowing and breathing. Babies with SMA1 are unable to lift their heads , have difficulty rolling over and are unable to sit unsupported.
There’s only one option to stop the progress of the disease -> gene therapy.
Gene therapy is offered in the USA since spring 2019. All it takes is one dose for life. Single injection with the medicine provides a copy of the damaged SMN1 gene and restores its functions. As a result is stops the dying of the muscles.
Although this is the greatest chance of life, it’s beyond Hania’s parents reach.
Hania needs to be treated in the USA because there’s no such treatment in Europe. Gene therapy is the most expensive medicine that costs nearly 2.5 millions dollars. Hania’s parents are desperate to save their daughters life but they don’t have that much money.
I created this page because Hania’s story touched my heart and I decided to help her. I was heartbroken when I saw how her parents are struggling and worrying every day if they’ll be able to afford the treatment. As I said at the begging we’re from the same town in Poland named Elk. It is a small town and it’s hard to raise the money there. I am asking you to help this little baby girl with all my heart. Any financial assistance would be a gesture of empathy and support during this difficult time. This help is very much needed and appreciated. Many people are already praying for Hania and her family.
Please help Hania win the battle.
We will thank God for a miracle.
Any donations, even small ones would mean a lot. I will personally send all the raised money to Hania’s account in “Gifts from the heart” foundation. It’s a non profit charity organization that brings ill and disabled children from European countries to the USA and help them receive high quality medical treatments. You can find out more about it on their website https://darserca.org/en/.
Thank you and God bless you!
Justyna Z.
When Hania was just 1 month old her parents learned that there was something wrong with their daughter. That little girl was being very lethargic, unable to lift her head up and stopped moving her arms and legs.
After many visits in hospital, endless doctors consultations Hania was diagnosed with a spinal muscular athropy type1 (SMA1). That news was incredibly shocking to family and friends.
SMA is a genetic disease that gradually paralyzes babies. Babies with SMA type 1 are often described as “floppy” babies, due to their low muscle tone (hypotonia) and severe muscle weakness. Muscle weakness affects movement, swallowing and breathing. Babies with SMA1 are unable to lift their heads , have difficulty rolling over and are unable to sit unsupported.
There’s only one option to stop the progress of the disease -> gene therapy.
Gene therapy is offered in the USA since spring 2019. All it takes is one dose for life. Single injection with the medicine provides a copy of the damaged SMN1 gene and restores its functions. As a result is stops the dying of the muscles.
Although this is the greatest chance of life, it’s beyond Hania’s parents reach.
Hania needs to be treated in the USA because there’s no such treatment in Europe. Gene therapy is the most expensive medicine that costs nearly 2.5 millions dollars. Hania’s parents are desperate to save their daughters life but they don’t have that much money.
I created this page because Hania’s story touched my heart and I decided to help her. I was heartbroken when I saw how her parents are struggling and worrying every day if they’ll be able to afford the treatment. As I said at the begging we’re from the same town in Poland named Elk. It is a small town and it’s hard to raise the money there. I am asking you to help this little baby girl with all my heart. Any financial assistance would be a gesture of empathy and support during this difficult time. This help is very much needed and appreciated. Many people are already praying for Hania and her family.
Please help Hania win the battle.
We will thank God for a miracle.
Any donations, even small ones would mean a lot. I will personally send all the raised money to Hania’s account in “Gifts from the heart” foundation. It’s a non profit charity organization that brings ill and disabled children from European countries to the USA and help them receive high quality medical treatments. You can find out more about it on their website https://darserca.org/en/.
Thank you and God bless you!
Justyna Z.
Organizer
Justyna Zawistowska
Organizer
Northbrook, IL
