Help keep #teamBella together
Donation protected
Bella (8months) has congenital hydrocephalus and aqueductal stenosis which after a failed endoscopic third ventriculostomy required a VP shunt which has had to be revised a few times already. She has intractable epilepsy, congenital bilateral cataracts, bilateral moderate hearing loss with hearing aids, intracranial calcification, Gastro-oesophageal reflux disorder, constipation and a small ventricular septal defect as well as evolving cerebral palsy...which means that helping Bella be the best she can be is going to take A LOT of patience and support. Both medically and financially.
Right now our little family's main concern is being able to be there for one another at the hospital without worrying that there will be added financial strain. With my maternity leave ending and Steven being self employed when we are both in Glasgow there's no money coming in to keep a roof over our heads never mind funding the specialist equipment that Bella is already needing.
We will have to get adapted car seats, buggies, beds quite possibly hoists and wheelchairs as well as sensory toys and help in order to let her be able to communicate with us. Schools, medical treatment and housing are also future concerns of ours. Our world has been turned upside down and the future for Bella's life is very uncertain. We don't know what caused this and there hasn't been a specific syndrome identified which means we really don't know how long we have with our beautiful girl.
Neither Steven or I are very good at asking for help. There have been a lot of friends offering encouragement and support saying if there's anything they can do let them know. Well guys, unfortunately as Bella has specific medical needs I can't just ask one of you to take Bella for an hour or two whilst I go shopping or for a much needed sleep instead what you can do is keep our family together by donating a little of your hard earned money to make sure we can be here to support our girl. We really appreciate all the lovely messages and prayers from each and every one of you. If you can't afford to donate even a couple of pound please know that every thought of well being is greatly welcomed and we will love you all anyway.
Love from #TeamBella thank you!
Right now our little family's main concern is being able to be there for one another at the hospital without worrying that there will be added financial strain. With my maternity leave ending and Steven being self employed when we are both in Glasgow there's no money coming in to keep a roof over our heads never mind funding the specialist equipment that Bella is already needing.
We will have to get adapted car seats, buggies, beds quite possibly hoists and wheelchairs as well as sensory toys and help in order to let her be able to communicate with us. Schools, medical treatment and housing are also future concerns of ours. Our world has been turned upside down and the future for Bella's life is very uncertain. We don't know what caused this and there hasn't been a specific syndrome identified which means we really don't know how long we have with our beautiful girl.
Neither Steven or I are very good at asking for help. There have been a lot of friends offering encouragement and support saying if there's anything they can do let them know. Well guys, unfortunately as Bella has specific medical needs I can't just ask one of you to take Bella for an hour or two whilst I go shopping or for a much needed sleep instead what you can do is keep our family together by donating a little of your hard earned money to make sure we can be here to support our girl. We really appreciate all the lovely messages and prayers from each and every one of you. If you can't afford to donate even a couple of pound please know that every thought of well being is greatly welcomed and we will love you all anyway.
Love from #TeamBella thank you!
Fundraising team (2)
Leanne Thompson
Organizer
Steven Duncan
Team member
