Help for Hailey, medical bills etc
Donation protected
https://wwwUp until September 2016 hailey had a pretty regular Daily life went to school, hung out with friends, walked her grandparents dogs and went to cheerleading. She had very rarely been sick or even to the doctors that much. But on the 14th of September her life kind of changed in a big way. Hailey suffered a minor ankle sprain, everyone thought not that big of a deal it happens to lots of people all the time. Never could we have imagined the pain and suffering that the next 9+ months would bring to this kid! After months going by with this "sprained ankle" getting worse each day it became very apparent that some thing more was going on. After 7 months of multiple doctors visits, ER visits, surgeons, MRIs, X-rays and ct scans and still no clean answer as to why hailey was in so much pain and could not walk. Finally some answers came in March 2017 when hailey got into the pain clinic at children's hospital and they gave her the diagnosis of Complex Regional Pain Syndrome (CRPS).
Complex Regional Pain Syndrome, CRPS, formerly known as RSD Reflex Sympathetic Dystrophy, is a progressive disease of the Autonomic Nervous System, and more specifically, the Sympathetic Nervous System. The pain is characterized as constant, extremely intense, and out of proportion to the original injury. The pain is typically accompanied by swelling, skin changes, extreme sensitivity, and can often be debilitating. It usually affects one or more of the four limbs but can occur in any part of the body and in over 70% of the victims it spreads to additional areas.
CRPS is ranked as the most painful form of chronic pain that exists today by the McGill Pain Index.
Hailey has been in constant pain since this started. Their has been times were she has cried in pain for days at a time as their was nothing that would relieve the pain. At the end of January Hailey lost all movement in her ankle and foot. Then near the end of March the pain and sensitivity moved up her leg to just under her knee. Hailey's foot and leg are so sensitive to touch that even rubbing a feather on it has her screaming in pain, she would describe the touch of the feather as feeling like a knife cutting her. She can not wear shoes or socks on her right foot and no jeans or tights can touch her leg as it is too painful to have things touch her skin.
The treatment for CRPS does not come cheap. It requires a lot of physiotherapy to try and get this calmed down and hopefully eventually walk. Hailey has to go to a phycologist to help deal with the pain management of this chronic pain disease. On top of all of that she has many prescription, vitamins, and medical supplies needed to treat her and the list goes on. She has been told to go swimming every second day to try and help get some movement back in her foot. Then theirs the missed days in pay to get her to appointments, multiple visits to children's hospital and parking. All these things are adding up very quickly and are not covered by the government even though they are all doctors orders and the only way for her to hopefully get better. Without doing these things hailey is at risk for losing all mobility in her leg.
This has been a huge financial burden on the family with the monthly costs coming in around $1600-$2000 a month. This is a huge hit to the family that has already been hit hard the last couple of years with Gary being on strike for a year then breaking his back a year and a half ago.
It is absolutely heartbreaking to see someone you love so much and who is so young be in so much pain. She has been told by the doctors that this is going to hurt like hell their just no way around it. She just has to learn how to deal with it.
If anyone can donate anything to help them out and try and relieve some of their stress so they can just focus on getting hailey better and not have to worry about how they are going to pay for all of this it would be greatly appreciated.
For more info on CRPS:
https://medlineplus.gov/ency/article/007184.htm
Complex regional pain syndrome: MedlinePlus Medical Encyclopedia
Read our article and learn more on MedlinePlus: Complex regional pain syndrome
medlineplus.gov
.facebook.com/?ref=tn_tnmn&qsefr=1#
Complex Regional Pain Syndrome, CRPS, formerly known as RSD Reflex Sympathetic Dystrophy, is a progressive disease of the Autonomic Nervous System, and more specifically, the Sympathetic Nervous System. The pain is characterized as constant, extremely intense, and out of proportion to the original injury. The pain is typically accompanied by swelling, skin changes, extreme sensitivity, and can often be debilitating. It usually affects one or more of the four limbs but can occur in any part of the body and in over 70% of the victims it spreads to additional areas.
CRPS is ranked as the most painful form of chronic pain that exists today by the McGill Pain Index.
Hailey has been in constant pain since this started. Their has been times were she has cried in pain for days at a time as their was nothing that would relieve the pain. At the end of January Hailey lost all movement in her ankle and foot. Then near the end of March the pain and sensitivity moved up her leg to just under her knee. Hailey's foot and leg are so sensitive to touch that even rubbing a feather on it has her screaming in pain, she would describe the touch of the feather as feeling like a knife cutting her. She can not wear shoes or socks on her right foot and no jeans or tights can touch her leg as it is too painful to have things touch her skin.
The treatment for CRPS does not come cheap. It requires a lot of physiotherapy to try and get this calmed down and hopefully eventually walk. Hailey has to go to a phycologist to help deal with the pain management of this chronic pain disease. On top of all of that she has many prescription, vitamins, and medical supplies needed to treat her and the list goes on. She has been told to go swimming every second day to try and help get some movement back in her foot. Then theirs the missed days in pay to get her to appointments, multiple visits to children's hospital and parking. All these things are adding up very quickly and are not covered by the government even though they are all doctors orders and the only way for her to hopefully get better. Without doing these things hailey is at risk for losing all mobility in her leg.
This has been a huge financial burden on the family with the monthly costs coming in around $1600-$2000 a month. This is a huge hit to the family that has already been hit hard the last couple of years with Gary being on strike for a year then breaking his back a year and a half ago.
It is absolutely heartbreaking to see someone you love so much and who is so young be in so much pain. She has been told by the doctors that this is going to hurt like hell their just no way around it. She just has to learn how to deal with it.
If anyone can donate anything to help them out and try and relieve some of their stress so they can just focus on getting hailey better and not have to worry about how they are going to pay for all of this it would be greatly appreciated.
For more info on CRPS:
https://medlineplus.gov/ency/article/007184.htm
Complex regional pain syndrome: MedlinePlus Medical Encyclopedia
Read our article and learn more on MedlinePlus: Complex regional pain syndrome
medlineplus.gov
.facebook.com/?ref=tn_tnmn&qsefr=1#
Organizer and beneficiary
Gloria Fee Keele
Organizer
Cultus Lake, BC
Terra Taggart
Beneficiary
