Hi, my name is Lynn and my son Benicio was diagnosed at birth with Vesicoureteral Reflux, a Neurogenic Bladder and CKD stage 3b.
In Beni’s first year of life he had 8 surgeries, his first at 6 days old. In his first year of life he was not able to be submerged in water due to a Vesicostomy. He loved the water so that’s was very hard. Finally at age 2 Beni had a surgery to place a Mitrofanoff. This would give him a better quality of life and he would be able to live a more normal life and most of all SWIM! The doctors used his appendix, which is shaped like a tube, and connected it from his belly button to his bladder. This made a port for him to be catheritized though. He requires intermittent catheterizations due to his bladder problems. This surgery was a life changer for Beni!
Beni has grown into a strong little 4 year old boy despite his prognosis from birth. He still has a very long road ahead including kidney transplants but right now he is stable and enjoying every minute of life. If you have ever met Beni you know he’s a special little boy. He touches everyone he meets and leaves a lasting impression. He is so resilient and he’s the happiest little boy.
A few months ago Beni was granted a wish from Make-A-Wish! We felt so blessed and he was so excited. Beni LOVES to swim so he asked for a pool as his wish. Obviously a pool isn’t a simple wish and there is a lot involved. The organization is going to provide everything for the pool and excavating needed which is a blessing. However, where the pool needs to be placed is off our deck. The problem is we were told our deck needs to be totally rebuilt because it is in really bad shape and not up to code. If this isn’t fixed Beni won’t be able to have the pool. This is an expense we did not expect and with the cost of materials we aren’t sure if it’s possible.
We want to make this the best for Beni so we’re asking for your help to build a new deck. If you can’t contribute financially but are a contractor or can donate materials that would be amazing also.
Please help us make Beni’s wish the best it can be. No amount is too small.
Thank you for your love and support!