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Heart Failure/Transplant Patient

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I am a patient at USC Keck Hospital. I have been suffering from hereditary heart disease. It was diagnosed in August of 2017. For 2 years my family and myself have struggled with the ups and downs of my health issues.  My cardiomyopathy was inherited from my grandfather's side of the family where I watched many of them pass away due to the disease. Just recently I lost a cousin and God brother to heart failure. While I was being released from a defibrillator & pacemaker surgery at age 37. He passed away. I literally was discharged the before the funeral. My uncles and male descendants have struggled with this heart issue for many years. Many only living to the age of mid forties. I was 37 at diagnosis.  I look back now and remeber having issues while playing baseball ball as a kid or running in school. I felt chest tightness and dizzy spells but was teased by coaches and kids my age that I was just lazy. So much that even I believed it was explained away as my own fault rather then something serious. In recent years I've had many trips to the ER and a multitude or medications to endure. I'm now 40 and in end stage heart failure. My doctors are hopeful that I will be a successful transplant candidate. Although as I'm told a transplant only "trades" one set of problems for another set. Meaning I'll be on medications and doctors care for the rest of my life. I do anything as long as I get to watch my nephew grow. Hes currently 2 years old. I've never had children myself and glad I wont leave them with this inherited issue or the loss of another loved one as long as I can help that. I sometimes regret not having children but also know the problematic health concerns I deal with end with me. I created this go fund me to help me take a trip with my nephew. I took him to Disneyland before I got sick and he loved it. I've never been on a cruise myself and hear there is a Disney cruise. Since I'm currently disabled and no longer working I need help to get us on a trip of a lifetime. I contacted the CEO of disney and was referred to the head of the cruise line but was denied assistance. I assume they didnt want to be responsible for health concerns but my health and ability to enjoy the days I have left should be solely my own concern. Every little bit helps and though I may need his parents to help both him and I enjoy this trip. I ask anyone willing to contribute to please do so. This is my one and only wish. Call it a request a bucket list or what ever you see fit. God bless you and thank you for the time to read this and the consideration. I wont be able to go on any trip unless I recive a transplant. So it is my hope God willing I will greatfuly receive the gift of life from a generous donor and their family. Although I struggle with the fact someones life has to end for the gift of life for me to continue. I appreciate that they will have made such a selfless decision to help someone like me in need. I pray every day for the donor and their family to be blessed and surrounded in love and care for eachother. May they feel comfortable knowing how appreciative and greatful I am that I will honor and respect this gift all the days of my life.
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    Organisator

    Christopher Arce
    Organisator
    Hacienda Heights, CA

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