Spende geschützt
Hi, I didn't think I'd need to do this again but I'm left with no choice.
My son Cameron, 17 at the time, was diagnosed with AML (acute myeloide leukaemia) Oct 6th 2020. He endured 3 out of 4 rounds of chemo which put him into remission.. (Remission is considered 5% or less blasts - immature cells that turn into Leukeamia). He couldn't do 4th round to completely obliterate the leukeamia cells due to catching a potentially fatal fungal disease (fusarium) which thankfully only attached to his muscles and not his vital organs. (Imagine marble sized boils but inside you living on your muscles). Multiple ops to drain them and physio to regain muscle and walk again.
Okay 18 months of remission later, Cameron relapsed. July 14th 2022 we got the news. Different hospital, different doctors and none of them had hope. Told me Cameron will have 7 days of intense chemo (HIDAC) and I only have potentially a month left with him as it would possibly kill him. Worst news ever! But.... he breezed through it with very little side effects. Shows how strong my boys fight is for life. Unfortunately 7days of 2 doses daily of 1500mg chemo did little to obliterate the leukaemia cells. Docs expected a miracle and Cam to be in remission and offered no more IV chemo. Our options are now limited to oral chemo tablets Gilteritnib (thankfully only got approved for PBS a week before we got approval and the almighty $25grand bottle of Venetoclax.
Cams still fighting his battle against this aggressive beast 5 months later. Bone marrow transplant was scheduled for Nov 28th but Cam delayed it after being told he only had 10% chance surviving it. Honestly why go through that trauma if docs don't have hope?
Well, we have hope. We hope the chemo tablets do what there designed to do. To attack the FLT3 mutation. The least favourable mutation that is smart enough to become resistant to traditional chemo.
We need help. I've had couple fuel and food vouchers from leukaemia foundation which am very grateful for, but it doesn't cover the multiple weekly appointment trips, all Cams medications, household bills, we are struggling hard-core. It's taken wat little pride I have left to reach out publicly for help. Anything will help. I need to cover 2 bills, (1 of them a hospital pharmacy bill) a big food shop, full tank of fuel rego and a gift each to my 3 boys for Xmas as I can't even afford that right now.
This could possibly be Cameron's last Christmas and I'm just gutted stressing over bills instead of making the most of what should be a memorable season.
Thankyou
Organisator
Lyn Bellis
Organisator
Collingwood Park, QLD